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Active: 9853 users

I was just diagnosed with Narcolepsy

Blogs > Zedders
Post a Reply
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Zedders
Profile Blog Joined April 2010
Canada450 Posts
February 02 2011 03:40 GMT
#1
Hey guys this is my first blog....I'll just say a little about myself first, then on to the topic :D

I started playing bw for about 3 months before Starcraft 2 came out. I had played Terg and Zoss in bw but I thought I was better at toss. So I played my placement matches with Toss, 0-5 bronze:/ Anyways after about 20 games I switched to Zerg because I had originally liked them the most anyways. It's taken me awhile but I'm stiill in Plat with 2680 Pts

...O.K. now that you know all about me...


So early last December I went to a sleep laboratory for the second in that year because I've always had problems with my sleep schedule. Staying on track with the everyday regular hours seems difficult for me to adhere to. Some months I've even had a reverse schedule, where I would go to bed when I get back from school and then sleep for however long I please. I would wake up in the dark do whatever work needed to be done and then went to school when it was time.
It actually helped me be awake during lectures, but kinda lonely... nobody is up at 3:00am

Anyways originally it was believe that I had sleep apnea, however after getting the M.S.L.T. tests back it showed that I went into REM sleep 3 out of 4 times I went to sleep and I had a score of 3 mins.

My entire life I've been told that I should apply myself more, that I have so much more that I could be doing with my time and that I shouldn't be so damn lazy. I've always carried such a large amount of guilt with me because I've never had any energy or motivation to do anything much besides sleep a lot.

Narcolepsy affects 1 in 2000 people and has 2 forms. Narcolepsy with cataplexy (Cataplexy is a sudden episode of loss of muscle function which can lead to suddenly falling asleep) and Narcolepsy without cataplexy. I have the latter so thankfully my doctor didn't report me to the Ministry so I can still drive as I have not had any cataplexy in my life, but the EDS (Excessive daytime sleepiness) is ever present in my daily schedule and makes life difficult.

Doctor also said that much research has been put into this and that there are ways now to manage narcolepsy.

I'm suuuper excited because up until now I thought I was just really lazy and depressed but hopefully once I get medicated things will be a lot easier for me!

any TLers with Narcolepsy please share your experiences with me. I don't know anyone at all with Narcolepsy at the moment.

Thx for reading <3


*****
BrodiaQ
Profile Blog Joined October 2008
United States892 Posts
February 02 2011 03:53 GMT
#2
Well sucks you have to deal with it but glad you have a good outlook on things and hopefully the medication helps alot.
"So come right up and let me squash your creativity with my iron fist of conservative play."--Nony
aimaimaim
Profile Blog Joined March 2010
Philippines2167 Posts
February 02 2011 04:06 GMT
#3
all my life ive personally knew 2 people with this .. one of them, he always gets picked by the lecturing doctor during classes .. hell, he doesn't even care if he is sleeping in a room full of cadavers ..

you just need to tell your boss about your condition and you'll be fine ..
Religion is a dying idea .. || 'E-sport' outside Korea are nerds who wants to feel like rockstars. || I'm not gonna fuck with trolls on General Forum ever again .. FUCK!
Gatsbi
Profile Joined April 2010
United States1134 Posts
February 02 2011 04:13 GMT
#4
I definitely got Necrophilia and Narcolepsy mixed up and thought this thread was going to be about you having sex with dead people... oops...
"IF WHAT YOU DO NOT KNOW IS MORE THAN WHAT YOU HAVE KNOWN. THEN YOU HAVE NOT KNOWN ANYTHINIG YET." - Rev Kojo Smith
ghermination
Profile Blog Joined April 2008
United States2851 Posts
February 02 2011 04:13 GMT
#5
Well at least, if you look on the bright side, you're gonna get some nice stimulant medications. Enjoy your awesome Dexedrine prescription!
U Gotta Skate.
Zedders
Profile Blog Joined April 2010
Canada450 Posts
February 02 2011 04:16 GMT
#6
On February 02 2011 13:13 Gatsbi wrote:
I definitely got Necrophilia and Narcolepsy mixed up and thought this thread was going to be about you having sex with dead people... oops...


DAMN hopefully your the only one who makes this mistake...could get awkward down at the morgue...


On February 02 2011 13:13 ghermination wrote:
Well at least, if you look on the bright side, you're gonna get some nice stimulant medications. Enjoy your awesome Dexedrine prescription!


I havent heard of Dexedrine, but they mentioned ritalin and modafonil
Raeleigh
Profile Blog Joined September 2010
Canada902 Posts
February 02 2011 04:19 GMT
#7
I didn't know this existed p_q
That's how I feel, everyday. But my doctor just insists that I get more blood tests done, that I take more vitamins, that I get out and do more.

Doesn't help. ;__;
you are perfect porcelain.
Zedders
Profile Blog Joined April 2010
Canada450 Posts
February 02 2011 04:27 GMT
#8
On February 02 2011 13:19 Raeleigh wrote:
I didn't know this existed p_q
That's how I feel, everyday. But my doctor just insists that I get more blood tests done, that I take more vitamins, that I get out and do more.

Doesn't help. ;__;


Every single day I feel like I'm not doing something legitimate or feel guilty about something for not doing it. At first I thought I was trying to be rebellious and just hated myself for being all dramatic and depressed constantly sine I wanted no part of everyday life and i just wanted SLEEP. But then Im in bed, tired of sleeping, but too tired to go do anything. I had blood tests done as well because they thought it was anemia maybe or mono. Blood tests showed that I showed indicated I was under a lot of stress and i started going on anti depressents since I was 'depressed'. They didnt really help all that much but I went to psychiatrists and such and talked to a bunch of people.

People tell me to excersise every day go out and do things but i just caant everyday. If this is what you feel like, you should really get some sleep tests done to see if you have a sleep disorder. When I sleep I dont get any rest from it, and it's been pretty destructive in my life. So definetly get it checked out if this sounds familiar
Raeleigh
Profile Blog Joined September 2010
Canada902 Posts
February 02 2011 04:31 GMT
#9
I don't know, maybe it's different.
I call in sick for work or say i'm gonna be late so often because I'd rather sleep. I can't sleep for more than about 10 hours, but I definitely try and definitely wish I could. But I always wake up way more tired than when I went to bed.
It makes it hard cause when I'm tired my mood goes up and down like there's no tomorrow. x__x

I had blood tests done cause they thought I had diabetes, cause they thought it was anemia, cause they think I have low iron or calcium. Idk. =________=''
you are perfect porcelain.
seRapH
Profile Blog Joined April 2009
United States9797 Posts
February 02 2011 04:40 GMT
#10
That... sounds really not pleasant...

Funny thing is that I don't have narcolepsy and find myself sleeping more during the day than at night XD But at least I'm not "excessively sleepy" during the day.

TL SUPPORT GROUP <3
boomer hands
Zedders
Profile Blog Joined April 2010
Canada450 Posts
February 02 2011 04:41 GMT
#11
Well anemia can very well make you feel tired a lot of the time my mum has it
Hidden_MotiveS
Profile Blog Joined February 2010
Canada2562 Posts
Last Edited: 2011-02-02 05:36:37
February 02 2011 05:34 GMT
#12
Why does it sound like I have all your conditions?

Can you elaborate more on narcolepsy?
evanthebouncy!
Profile Blog Joined June 2006
United States12796 Posts
February 02 2011 05:37 GMT
#13
You should go study computer science. I don't have Narcolepsy yet I experience the same effects of it by the nature of my work.
Life is run, it is dance, it is fast, passionate and BAM!, you dance and sing and booze while you can for now is the time and time is mine. Smile and laugh when still can for now is the time and soon you die!
Zedders
Profile Blog Joined April 2010
Canada450 Posts
Last Edited: 2011-02-02 05:59:31
February 02 2011 05:56 GMT
#14
On February 02 2011 14:34 Hidden_MotiveS wrote:
Why does it sound like I have all your conditions?

Can you elaborate more on narcolepsy?



Well considering I just found out about it I only know a bit from what I have researched and what the doctor told me.

Narcolepsy is a chronic sleep disorder which is characterized by excessive daytime sleepiness (EDS). Of course daytime sleepiness can be many other things such as insomnia or anxiety/stress related. From what I gather Narcoleptics enter the REM stage of sleep way faster than a regular person does. From my studies I entered REM within 3 minutes of falling asleep during my sleep test, almost every time I fell asleep, whereas most people do not experience REM sleep until after 90 minutes.

Now obviously this isn't normal but as to the problems that it can cause are several. Cataplexy is a sudden onset of weak muscles caused from intense emotion (laughter or crying or excitement) and this is the most memorable of the symptoms since even some dogs have it and make for adorable results :D

Narcoleptic Dog

Luckily I don't get cataplexy, as there are 2 types of narcolepsy. Narcolepsy with cataplexy, and without.

It seems in general university/college students have problems with sleep. Considering how much alcohol/caffiene/weed/nicotine/etc is consumed and the every day stress that everyone is under it is not surprising to me that people are having trouble staying awake in the daytime, but from what I understand Narcolepsy specifically is where you go into REM way too fast and a result proper sleep is never attained.
WarChimp
Profile Blog Joined March 2010
Australia943 Posts
February 02 2011 06:30 GMT
#15
Hey mate its good to hear that you don't feel so guilty. For me, I am lazy I can never really be bothered to do anything. Not because I suffer from anything, but I am just lazy. Hopefully life will be good and lets hope you don't suffer from the cataplexy, because I couldn't imagine how lame that must be having your license taken away.
Half
Profile Joined March 2010
United States2554 Posts
February 02 2011 06:56 GMT
#16
I sometimes feel like I'm a narcoleptic, but then I remember that's probably because I've had 8 hours of sleep in the last three days :x.
Too Busy to Troll!
[Eternal]Phoenix
Profile Joined December 2010
United States333 Posts
February 02 2011 07:06 GMT
#17
I've run reverse schedules and can't stay on schedule ever. I actually wonder a bit now... might be worth talking to a doctor about, but I don't need tons of testing in the middle of school, that just sounds stressful -_-
'environmental legislation is like cutting scvs to stop an imaginary allin that is never going to come, while your opponent ecos and expands continually'
SushilS
Profile Joined November 2010
2115 Posts
February 02 2011 07:08 GMT
#18
Wait a sec! Still sounds like you've got OSA! Can you tell me your BMI atleast?
iceiceice: I’m going to make this short; I am the one true tinker player.
Zedders
Profile Blog Joined April 2010
Canada450 Posts
February 02 2011 07:25 GMT
#19
On February 02 2011 16:08 SushilS wrote:
Wait a sec! Still sounds like you've got OSA! Can you tell me your BMI atleast?


26.5. I also have asthma tho, so that could play a factor
Kerotan
Profile Blog Joined May 2008
England2111 Posts
Last Edited: 2011-02-02 08:06:02
February 02 2011 07:57 GMT
#20
I have epilepsy, which is only mildly related, I use to get night terrors alot, and I remember doctors suggesting Narcolepsy, but they must have ruled it out, although it does feel most days like I'm narcoleptic.
(In fact, they considered aspergers syndrome when I was a kid, I'm so special)

I'm glad that you don't have the cataplexy that can go with it, that can make driving a car ever difficult, the law varies from state to state, but in this country, if you have an episode you are in essence banned from driving for 3 years.
Actually after looking this up to see if I was right, the law is kinda confusing.
Nerdette // External revolution - Internal revolution // Fabulous // I raise my hands to heaven of curiosity // I don't know what to ask for // What has it got for me? // Kerribear
imBLIND
Profile Blog Joined December 2006
United States2626 Posts
February 02 2011 08:14 GMT
#21
As long as you control when you want to fall asleep, entering REM sleep in three minutes may not be such a bad thing o.o

I have the symptoms, but I just have like severe onset of senioritis...
im deaf
Crazyeyes
Profile Blog Joined March 2008
Canada1342 Posts
February 02 2011 08:32 GMT
#22
On February 02 2011 13:13 Gatsbi wrote:
I definitely got Necrophilia and Narcolepsy mixed up and thought this thread was going to be about you having sex with dead people... oops...


http://www.purepwnage.com/teh_tv_show/email_bag/jeremys-mail-sac-12
:D

--------------------------

Strange, I thought that the defining trait of Narcolepsy is 'a sudden irresistable urge to sleep,' in which you'd basically be powerless to avoid. So if you're driving while it happens, you've got to pull over.
And then thers cataplexy, where you like lose all muscle control and just fall down. Which can apparantly happen while remaining concious?

Anyways, it's really nice to read about someone getting diagnosed with a disease [or whatever it is ;P] and having such a positive outlook.
I hope everything works out for you, buddy!
WeeEEeeEEEeeEEEeeeEEee!!
Ghad
Profile Blog Joined April 2010
Norway2551 Posts
February 02 2011 09:40 GMT
#23
Great for you that you got a diagnosis, important step towards a better life. Hope things work out!

Some great comedy based around narcolepsis though, you should feel good about that at least.
forgottendreams: One underage girl, two drunk guys, one gogo dancer and starcraft 2. Apparently just another day in Europe.
Hidden_MotiveS
Profile Blog Joined February 2010
Canada2562 Posts
Last Edited: 2011-02-02 14:49:09
February 02 2011 14:47 GMT
#24
On February 02 2011 14:56 Zedders wrote:
Show nested quote +
On February 02 2011 14:34 Hidden_MotiveS wrote:
Why does it sound like I have all your conditions?

Can you elaborate more on narcolepsy?



Well considering I just found out about it I only know a bit from what I have researched and what the doctor told me.

Narcolepsy is a chronic sleep disorder which is characterized by excessive daytime sleepiness (EDS). Of course daytime sleepiness can be many other things such as insomnia or anxiety/stress related. From what I gather Narcoleptics enter the REM stage of sleep way faster than a regular person does. From my studies I entered REM within 3 minutes of falling asleep during my sleep test, almost every time I fell asleep, whereas most people do not experience REM sleep until after 90 minutes.

I've had dreams in 20 minute naps before. There was this couch in my high school math tutor room. Took a nap there, had a dream about a girl on the math team. A sex dream... does that count, or do I have to fall into rem sleep faster more consistently?

I've had 1.5 hour naps too where I wake up during the middle of a dream to be induced by sleep paralysis as well. I could do this pretty consistently, so I think I only entered REM around that 90 minute mark. I guess the best thing to do would be to get myself tested, though as you said, at 1/2000, my chances of having narcolepsy are slim.

I don't know if this was directed at me, but I only drink coffee during exam season, and even then very rarely, I rarely drink, and I don't smoke weed.
MinoMino
Profile Blog Joined April 2010
Norway1103 Posts
February 02 2011 15:21 GMT
#25
On February 02 2011 23:47 Hidden_MotiveS wrote:
Show nested quote +
On February 02 2011 14:56 Zedders wrote:
On February 02 2011 14:34 Hidden_MotiveS wrote:
Why does it sound like I have all your conditions?

Can you elaborate more on narcolepsy?



Well considering I just found out about it I only know a bit from what I have researched and what the doctor told me.

Narcolepsy is a chronic sleep disorder which is characterized by excessive daytime sleepiness (EDS). Of course daytime sleepiness can be many other things such as insomnia or anxiety/stress related. From what I gather Narcoleptics enter the REM stage of sleep way faster than a regular person does. From my studies I entered REM within 3 minutes of falling asleep during my sleep test, almost every time I fell asleep, whereas most people do not experience REM sleep until after 90 minutes.

I've had dreams in 20 minute naps before. There was this couch in my high school math tutor room. Took a nap there, had a dream about a girl on the math team. A sex dream... does that count, or do I have to fall into rem sleep faster more consistently?

I've read that if you're really tired or sleep deprived, you'll enter REM sleep a lot faster. It's also possible to dream in non-REM sleep, though it's more rare. Even if it isn't narcolepsy, you should probably get to the bottom of it if you feel it's affecting your life too much. Wouldn't hurt to get some tests done.

Also, Zedders, on the bright side, if you ever get into lucid dreaming you'll probably have an easy time doing it, as most methods depend on getting into REM sleep quickly.
Blah.
skindzer
Profile Blog Joined May 2005
Chile5114 Posts
February 02 2011 15:47 GMT
#26
Im guessing youll end up taking Modafinil.
Its not only the rain that brings the thunder
BrTarolg
Profile Blog Joined June 2009
United Kingdom3574 Posts
February 02 2011 20:14 GMT
#27
I go into REM almost immediately when i sleep during the day, but at night it takes the usual 90 minutes

Some people call it narcolepsy i guess

Its hard to say, it doesn't REALLY get in the way, i just sleep a ton at random times and less at night

melatonin helps me get a full nights sleep and i need to sleep less in the day
Bratsche
Profile Joined November 2010
United States46 Posts
Last Edited: 2011-02-02 22:13:07
February 02 2011 22:11 GMT
#28
Zedders,

My girlfriend of 2+ years has narcolepsy. I can tell ya all about it our experiences with it. Just shoot me an email, markwirb@gmail.com



For relevance, she takes Provigil and Xyrem, along with Ritalin, to stay awake. We're both graduate students in the humanities.
A good composer does not imitate; he steals.
gurrpp
Profile Blog Joined October 2009
United States437 Posts
February 02 2011 22:28 GMT
#29
On February 02 2011 14:56 Zedders wrote:
From what I gather Narcoleptics enter the REM stage of sleep way faster than a regular person does. From my studies I entered REM within 3 minutes of falling asleep during my sleep test, almost every time I fell asleep, whereas most people do not experience REM sleep until after 90 minutes.

90 minutes!? I have dreams when I take 15 minute naps...
hot fuh days
luckyseven
Profile Joined December 2010
179 Posts
February 03 2011 00:10 GMT
#30
On February 02 2011 13:31 Raeleigh wrote:
I don't know, maybe it's different.
I call in sick for work or say i'm gonna be late so often because I'd rather sleep. I can't sleep for more than about 10 hours, but I definitely try and definitely wish I could. But I always wake up way more tired than when I went to bed.
It makes it hard cause when I'm tired my mood goes up and down like there's no tomorrow. x__x

I had blood tests done cause they thought I had diabetes, cause they thought it was anemia, cause they think I have low iron or calcium. Idk. =________=''


i saw a chart recently that said we go thru the dif sleep phases every ~40 mins, and it showed the best times to "wake up" because we were in a certain phase at that point. i think it said waking up after exactly 9 hours is ideal (also stuff like 8.2 hours, 7.4 hours or whatever). which is what im now trying to do. i feel soooooooooooo much better with ~9 hours sleep compared to 8.
Zedders
Profile Blog Joined April 2010
Canada450 Posts
February 03 2011 05:36 GMT
#31
On February 03 2011 07:28 gurrpp wrote:
Show nested quote +
On February 02 2011 14:56 Zedders wrote:
From what I gather Narcoleptics enter the REM stage of sleep way faster than a regular person does. From my studies I entered REM within 3 minutes of falling asleep during my sleep test, almost every time I fell asleep, whereas most people do not experience REM sleep until after 90 minutes.

90 minutes!? I have dreams when I take 15 minute naps...


Im not a sleep expert, but I don't think that REM sleep necessarily means dreaming.
Zedders
Profile Blog Joined April 2010
Canada450 Posts
Last Edited: 2011-02-03 05:40:38
February 03 2011 05:40 GMT
#32
On February 02 2011 17:32 Crazyeyes wrote:
Show nested quote +
On February 02 2011 13:13 Gatsbi wrote:
I definitely got Necrophilia and Narcolepsy mixed up and thought this thread was going to be about you having sex with dead people... oops...


http://www.purepwnage.com/teh_tv_show/email_bag/jeremys-mail-sac-12
:D

--------------------------

Strange, I thought that the defining trait of Narcolepsy is 'a sudden irresistable urge to sleep,' in which you'd basically be powerless to avoid. So if you're driving while it happens, you've got to pull over.
And then thers cataplexy, where you like lose all muscle control and just fall down. Which can apparantly happen while remaining concious?

Anyways, it's really nice to read about someone getting diagnosed with a disease [or whatever it is ;P] and having such a positive outlook.
I hope everything works out for you, buddy!


LOL Nuggles infest my life man. Good thing I got Necrophilia to keep em away tho

Thnx for the support
ulszz
Profile Blog Joined June 2007
Jamaica1787 Posts
February 08 2011 22:18 GMT
#33
did you get a swine flu shot?
everliving, everfaithful, eversure
Kenpachi
Profile Blog Joined August 2009
United States9908 Posts
Last Edited: 2011-02-08 22:30:50
February 08 2011 22:24 GMT
#34
wait if you fell sleepy (not asleep) everyday at about 11:45am, is this narcolepsy w/o cataplexy? ><
yea wtf that first paragraph in Wikipedia sounds exactly how i feel ;;..
Nada's body is South Korea's greatest weapon.
Zedders
Profile Blog Joined April 2010
Canada450 Posts
February 08 2011 23:25 GMT
#35
On February 09 2011 07:18 ulszz wrote:
did you get a swine flu shot?


YA LOL i heard it gave narcolepsy to some people or something. But i was feeling the symptoms since high school.


On February 09 2011 07:24 Kenpachi wrote:
wait if you fell sleepy (not asleep) everyday at about 11:45am, is this narcolepsy w/o cataplexy? ><
yea wtf that first paragraph in Wikipedia sounds exactly how i feel ;;..



no it could be a massive number of things. the only way to really know is if you go to get a sleep test done
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