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[Help] Surgery or noÉ

Blogs > WikidSik
Post a Reply
WikidSik
Profile Blog Joined November 2011
Canada382 Posts
Last Edited: 2013-05-15 23:36:50
May 15 2013 23:35 GMT
#1
Hey, has anyone here had something called Exotropic Convergence Insufficiency (more info can be found here: http://en.wikipedia.org/wiki/Exotropia) and today I had an appointment to a therapist and she told me that now I should probably get surgery, a surgery called Strabismus surgery. Has anyone had one of these for my problem (which is a birth defect btw) and has been able to see normally (and more importantly, be able to play starcraft!)

EDIT: sorry for the É, its supposed to be a question mark

Iv been here for 5.5 years. My other accounts are named "Sonu" and "Dalroti" || I had some more but I cant find them XD || known in sc2 as "Sonu"
itsjustatank
Profile Blog Joined November 2010
Hong Kong9154 Posts
May 16 2013 00:21 GMT
#2
seek advice from a medical professional, not an internet forum of randoms
Photographer"nosotros estamos backamos" - setsuko
docvoc
Profile Blog Joined July 2011
United States5491 Posts
May 16 2013 02:04 GMT
#3
On May 16 2013 09:21 itsjustatank wrote:
seek advice from a medical professional, not an internet forum of randoms

This. I think very few of us here are actually qualified to give any form of advice here on TL when it comes to medicine. Even the people that are can't do really do so because they can't really get a thorough evaluation. Go see a doctor dude.
User was warned for too many mimes.
WikidSik
Profile Blog Joined November 2011
Canada382 Posts
May 16 2013 02:04 GMT
#4
no i just wanted to talk about other pepple's experiences with it.
Iv been here for 5.5 years. My other accounts are named "Sonu" and "Dalroti" || I had some more but I cant find them XD || known in sc2 as "Sonu"
LuckyFool
Profile Blog Joined June 2007
United States9015 Posts
May 16 2013 02:06 GMT
#5
It's unlikely many people would have gone through something like that, seems like a rather rare condition. I could be wrong though who knows.

My advice would be get a couple different opinions though, see another eye doctor or two before making any decisions.
WikidSik
Profile Blog Joined November 2011
Canada382 Posts
Last Edited: 2013-05-16 02:12:28
May 16 2013 02:10 GMT
#6
in Canada after a certain age you have to pay for eye exams :/ is it like that in the states as well? And even the therapist I went to today was only because an eye doctor referred me to it.. i guess ill look up therapists that dont need referal (in Canada, I believe you can only get refered to a specialist, but ill check up on that).
Iv been here for 5.5 years. My other accounts are named "Sonu" and "Dalroti" || I had some more but I cant find them XD || known in sc2 as "Sonu"
WaveofShadow
Profile Blog Joined April 2010
Canada31494 Posts
May 16 2013 03:07 GMT
#7
I am actually studying to be an optometrist currently.
What kind of therapist did you see exactly? Did anyone speak to you about vision training?
I'm not going to go so far as to try and diagnose/give you advice that I am going to tell you to follow because as people have said, online medical advice is a no-no, but depending on the degree of exotropia and/or CI there are both surgical and non-surgical options, and both are extremely safe to my knowledge.

As far as your ability to gain normal binocular vision with surgery or training (again depending your degree of strabismus it may be surgery is the better option like your therapist? said) it really depends on your own body. For some people the strab surgery is simply cosmetic (to avoid the 'cross-eyed' or 'wall-eyed' look) and their vision may not improve. For others it may.

Hope that helps you out somewhat; good luck and may you have healthy vision!
twitch.tv/waveofshadow ||| Winner of AHGL's So You Think You Can Cast! ||| Juicy Dad for lyfe ||| 'idk i get a kick out of stupid things' - Jarms Yarng
hp.Shell
Profile Blog Joined April 2010
United States2527 Posts
May 16 2013 08:30 GMT
#8
Hello. I have esotropic strabismus. I really need to sleep, but I will return here shortly.
I had surgery about 7 years ago. The doctor was a beast -- he had a habit of not using microscopes during surgery, which actually made me feel pretty secure about it going in. Positive results, still no depth. More soon.
Please PM me with any songs you like that you think I haven't heard before!
WikidSik
Profile Blog Joined November 2011
Canada382 Posts
Last Edited: 2013-05-16 12:40:24
May 16 2013 12:39 GMT
#9
no i cant see anything with both eyes open, and i cant see 3d movies. how do you determine the degree of the exotropia. also i cant remember the kind of therapist she was. but the latin name (opt-something) i cant remember. she said she would just be making measurements and she basically gave me an eye exam but with a few more tests

EDIT: also mine is called "exotropic convergence insufficiency". like its both, so theres no need for a "/"
Iv been here for 5.5 years. My other accounts are named "Sonu" and "Dalroti" || I had some more but I cant find them XD || known in sc2 as "Sonu"
QuanticHawk
Profile Blog Joined May 2007
United States32075 Posts
May 16 2013 15:46 GMT
#10
have you tried googling to see if there are communities of people who have/had this?? most diseases have some kind of community of survivors online and that's gonna be a way better resource for yourquestion
PROFESSIONAL GAMER - SEND ME OFFERS TO JOIN YOUR TEAM - USA USA USA
hp.Shell
Profile Blog Joined April 2010
United States2527 Posts
May 16 2013 17:35 GMT
#11
opthomologist.
I'm fairly certain mine is called esotropic convergence insufficiency, meaning mine turn in rather than out.
Can you switch eyes? I can switch. When I switch, the other eye turns in.

Before surgery, I don't really remember how easy it was for me to look all the way out the corners of my eyelids, but now it is kinda difficult. I think this is because the muscles are placed a bit differently now. But I never look that far out of my eyelids anyway, so I haven't really felt bad about that.

Before surgery, the "eye I wasn't using" would always turn in no matter what. I had to concentrate on the center point, right above my nose, for other people to not notice my strabismus. However doing this made my vision really blurry, and I later learned that most people have a dominant eye anyways (the one they are currently "using" the most is the dominant one).

After surgery, my eyes were very sensitive for a few days. They gave me some pretty cool ray-bans the kids wear when they get glaucoma surgery but I just kept my eyes closed most of the time. I learned to eat by taking a snapshot of the plate, then a snapshot of my fork, and then eating blindly. Also I noticed that my vision wasn't straight anymore. In my left eye, it was as if the world had somehow rotated in such a way that there was maybe a 30 degree downhill slope toward my nose. In my right eye, it was the same downhill slope toward my nose. This was self-corrected by my brain over time. I didn't know it at the time, but when you look left and right you use all of your eye muscles at the same time. Some rotate it, kinda like what you see when someone rolls their eyes, and others pull and rotate. Since the muscles were now in new positions to correct my vertical and horizontal alignments, my vision took a while to get used to the new locations. The world wasn't angled, but my interpretation of it was.

Now, when I look in the mirror out of my left eye, my right eye doesn't turn! But, when I look from my right eye, my left eye turns. Still, it's not as noticeable as it was. I am overall happy with the surgery, because people have told me that they don't notice my eyes turning anymore. I'm not sure whether I believe them though. I think I will still have to find a way to work toward giving myself stereoscopic vision through practice and the "Fixing My Gaze" method before my self-consciousness / self-esteem issues subside completely.

For now I just try not to think about it. Which is a really hard thing to do when you're using your eyes all the time.

All the best.
Please PM me with any songs you like that you think I haven't heard before!
WikidSik
Profile Blog Joined November 2011
Canada382 Posts
Last Edited: 2013-05-16 23:06:31
May 16 2013 23:06 GMT
#12
no there arent any communities that I could find but thanks for the advice though. and also hp.Shell, idk how to tackle your self esteem issues but can you atleast play starcraft/type/read for long periods of time? or atleast just read and write and type, thats what im most concerned about.
Iv been here for 5.5 years. My other accounts are named "Sonu" and "Dalroti" || I had some more but I cant find them XD || known in sc2 as "Sonu"
WaveofShadow
Profile Blog Joined April 2010
Canada31494 Posts
May 17 2013 01:34 GMT
#13
On May 17 2013 02:35 hp.Shell wrote:
opthomologist.
I'm fairly certain mine is called esotropic convergence insufficiency, meaning mine turn in rather than out.
Can you switch eyes? I can switch. When I switch, the other eye turns in.

Before surgery, I don't really remember how easy it was for me to look all the way out the corners of my eyelids, but now it is kinda difficult. I think this is because the muscles are placed a bit differently now. But I never look that far out of my eyelids anyway, so I haven't really felt bad about that.

Before surgery, the "eye I wasn't using" would always turn in no matter what. I had to concentrate on the center point, right above my nose, for other people to not notice my strabismus. However doing this made my vision really blurry, and I later learned that most people have a dominant eye anyways (the one they are currently "using" the most is the dominant one).

After surgery, my eyes were very sensitive for a few days. They gave me some pretty cool ray-bans the kids wear when they get glaucoma surgery but I just kept my eyes closed most of the time. I learned to eat by taking a snapshot of the plate, then a snapshot of my fork, and then eating blindly. Also I noticed that my vision wasn't straight anymore. In my left eye, it was as if the world had somehow rotated in such a way that there was maybe a 30 degree downhill slope toward my nose. In my right eye, it was the same downhill slope toward my nose. This was self-corrected by my brain over time. I didn't know it at the time, but when you look left and right you use all of your eye muscles at the same time. Some rotate it, kinda like what you see when someone rolls their eyes, and others pull and rotate. Since the muscles were now in new positions to correct my vertical and horizontal alignments, my vision took a while to get used to the new locations. The world wasn't angled, but my interpretation of it was.

Now, when I look in the mirror out of my left eye, my right eye doesn't turn! But, when I look from my right eye, my left eye turns. Still, it's not as noticeable as it was. I am overall happy with the surgery, because people have told me that they don't notice my eyes turning anymore. I'm not sure whether I believe them though. I think I will still have to find a way to work toward giving myself stereoscopic vision through practice and the "Fixing My Gaze" method before my self-consciousness / self-esteem issues subside completely.

For now I just try not to think about it. Which is a really hard thing to do when you're using your eyes all the time.

All the best.

This is a really great post from a patient POV. I'm glad to hear your surgery was successful. We have learned self esteem issues are actually a huge factor for people getting strabismus surgery and it absolutely makes a difference to people's daily lives and mental health!
twitch.tv/waveofshadow ||| Winner of AHGL's So You Think You Can Cast! ||| Juicy Dad for lyfe ||| 'idk i get a kick out of stupid things' - Jarms Yarng
hp.Shell
Profile Blog Joined April 2010
United States2527 Posts
Last Edited: 2013-05-17 02:56:04
May 17 2013 02:45 GMT
#14
On May 17 2013 10:34 WaveofShadow wrote:
Show nested quote +
On May 17 2013 02:35 hp.Shell wrote:
opthomologist.
I'm fairly certain mine is called esotropic convergence insufficiency, meaning mine turn in rather than out.
Can you switch eyes? I can switch. When I switch, the other eye turns in.

Before surgery, I don't really remember how easy it was for me to look all the way out the corners of my eyelids, but now it is kinda difficult. I think this is because the muscles are placed a bit differently now. But I never look that far out of my eyelids anyway, so I haven't really felt bad about that.

Before surgery, the "eye I wasn't using" would always turn in no matter what. I had to concentrate on the center point, right above my nose, for other people to not notice my strabismus. However doing this made my vision really blurry, and I later learned that most people have a dominant eye anyways (the one they are currently "using" the most is the dominant one).

After surgery, my eyes were very sensitive for a few days. They gave me some pretty cool ray-bans the kids wear when they get glaucoma surgery but I just kept my eyes closed most of the time. I learned to eat by taking a snapshot of the plate, then a snapshot of my fork, and then eating blindly. Also I noticed that my vision wasn't straight anymore. In my left eye, it was as if the world had somehow rotated in such a way that there was maybe a 30 degree downhill slope toward my nose. In my right eye, it was the same downhill slope toward my nose. This was self-corrected by my brain over time. I didn't know it at the time, but when you look left and right you use all of your eye muscles at the same time. Some rotate it, kinda like what you see when someone rolls their eyes, and others pull and rotate. Since the muscles were now in new positions to correct my vertical and horizontal alignments, my vision took a while to get used to the new locations. The world wasn't angled, but my interpretation of it was.

Now, when I look in the mirror out of my left eye, my right eye doesn't turn! But, when I look from my right eye, my left eye turns. Still, it's not as noticeable as it was. I am overall happy with the surgery, because people have told me that they don't notice my eyes turning anymore. I'm not sure whether I believe them though. I think I will still have to find a way to work toward giving myself stereoscopic vision through practice and the "Fixing My Gaze" method before my self-consciousness / self-esteem issues subside completely.

For now I just try not to think about it. Which is a really hard thing to do when you're using your eyes all the time.

All the best.

This is a really great post from a patient POV. I'm glad to hear your surgery was successful. We have learned self esteem issues are actually a huge factor for people getting strabismus surgery and it absolutely makes a difference to people's daily lives and mental health!

Thanks! The good side of the self esteem issue (or bad side if you want to view it that way) is that it's largely a non-self perception issue. It's more of a how-others-perceive-me issue. I never viewed myself as inferior; I actually had 20/10 vision as a child and still retain 20/20 in one eye and about 20/30 in the other. No glasses or contacts. The problem is when other people insult you or notice your eyes are weird for the first time and start to act differently around you.

Eye contact problems leading to intimacy issues. Actually I still have had problems with this.

Having your head turned the wrong direction because you only use one eye.

It's not really being noticed that is the problem, it's more of an issue where people treat you as inferior because you are different. I read a blog recently about a guy who was learning Chinese for a girl he liked, and he became rather fluent, and he said whenever he went to China and started speaking to the locals in Chinese, he wouldn't really get substantial responses from them. "Oh wow you speak Chinese!" It's like that when people notice and are nice to you. It's like you don't belong to their culture so they feel obligated to be hospitable... something like that.

Nowadays I think I'm still very afraid of someone noticing and reacting negatively for it. It's not that it happens as much as it used to, but I'm still paranoid so I think about it a lot and try to make certain my eyes are as straight as they can be when I meet someone new. Not so much when I'm just walking down the street.

Ahhh, I've spent too much time on this again. But thank you for your support. You seem interested in learning so if there's anything I can do to promote equality among the stereoscopically-challenged, I'll be happy to help.

Edit: As I understand it, stereoscopic vision cannot be obtained through surgery alone. There is still a lot of effort and proper training that needs to be done. I had this tape when I was a kid that we would play on the TV. It was basically a dot moving around on the screen. Something like that cannot and will never help you use both eyes at the same time. It's not a three dimensional object....
Please PM me with any songs you like that you think I haven't heard before!
WikidSik
Profile Blog Joined November 2011
Canada382 Posts
Last Edited: 2013-05-17 14:29:30
May 17 2013 14:28 GMT
#15
hey I watched this tv show called Penn and Teller Bullshit and they have an episode on self esteem! its a really smart show. heres the link:


also, something I learned recently is that this thing called other people viewing you as weird is something your just making up inside your head, because you still think its weird. Iv actually met really cool people that have permanent lazy eyes and they are living great lives, and no one really seems to care about their condition. I think, atleast for me, is that when you start thinking that someone is percieving you as weird, you start acting weird to fulfil their expectation (b/c this is natural for people to fullfil other people's expectations) and then in turn they actually start to think your weird. Maybe your just uncomfortable about your condition. In my experience no one seems to care. Sure they will notice, but after that their like w.e. Try noticing unusual things in other people, see how you feel about it, and then you will understand other people's point of view. I hope this helps. Then again I could be wrong, cuz I havent lived your life.
Iv been here for 5.5 years. My other accounts are named "Sonu" and "Dalroti" || I had some more but I cant find them XD || known in sc2 as "Sonu"
hp.Shell
Profile Blog Joined April 2010
United States2527 Posts
May 17 2013 19:11 GMT
#16
Yeah, that does help, actually. Thanks for the insight! I'll try harder next time.
Please PM me with any songs you like that you think I haven't heard before!
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