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Dialysis

Blogs > Jockmcplop
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Jockmcplop
Profile Blog Joined February 2012
United Kingdom9614 Posts
December 05 2019 14:29 GMT
#1
So I spent last week in hospital suffering from kidney failure and I've been told I'm going to need dialysis in the hospital 3 times a week until I can get a transplant.

A few thoughts:

1: The NHS is amazing. The fact that I can turn up to hospital with a minor complaint and have them identify something important and then keep me there for a week while they plan a treatment -- for free -- is amazing. No-one should ever take it for granted, these places are staffed by amazing people, overworked and underpaid.

2: I'm going to have more time for hobbies but I also have to give up on any professional ambitions I had because I'm not going to be able to get a full time job until I have a transplant.

3: Everyone is treating me as though I'm dying but I feel fine to be honest.

4: The dietary restrictions for kidney patients are WEIRD. I can't have anything that's high in potassium, sodium or phosphates, so nutritious vegetables are out. Not being able to eat potatoes is heartbreaking but probably good in the long term hehe (I can eat an overboiled potato mush if I really want to but only without salt...).
I also get all the protein removed from my blood 3 times per week so I need food that's high in protein but low in mineral content, with no salt. This will take some adjusting to.

5: I now have a tube inserted into my chest, and the scar is going to be right on top of my only tattoo. Typical.


Now to attempt to negotiate the crippingly depressing UK benefits system...
+


RIP Meatloaf <3
Dangermousecatdog
Profile Joined December 2010
United Kingdom7084 Posts
Last Edited: 2019-12-05 14:41:24
December 05 2019 14:39 GMT
#2
Get better soon Jockmcplop.

Just out of curiosity, if you are comfortable answering, what was the minor complaint and how did on Earth did they identify kidney failure from that?
Jockmcplop
Profile Blog Joined February 2012
United Kingdom9614 Posts
December 05 2019 14:48 GMT
#3
On December 05 2019 23:39 Dangermousecatdog wrote:
Get better soon Jockmcplop.

Just out of curiosity, if you are comfortable answering, what was the minor complaint and how did on Earth did they identify kidney failure from that?


I had an itchy rash on my ankles that had been worsening for months so i went to the walk in center at the hospital for what I thought would be a 20 minute appointment and a prescription for cream or something.
They did a blood test as a precaution and the levels of EVERYTHING were out of whack.
RIP Meatloaf <3
BigFan
Profile Blog Joined December 2010
TLADT24920 Posts
December 05 2019 14:58 GMT
#4
On December 05 2019 23:48 Jockmcplop wrote:
Show nested quote +
On December 05 2019 23:39 Dangermousecatdog wrote:
Get better soon Jockmcplop.

Just out of curiosity, if you are comfortable answering, what was the minor complaint and how did on Earth did they identify kidney failure from that?


I had an itchy rash on my ankles that had been worsening for months so i went to the walk in center at the hospital for what I thought would be a 20 minute appointment and a prescription for cream or something.
They did a blood test as a precaution and the levels of EVERYTHING were out of whack.

Oh wow. Sorry to hear that. Dialysis is not something you wish on your worst enemy. Hope you get better and get that transplant sooner than later.
Former BW EiC"Watch Bakemonogatari or I will kill you." -Toad, April 18th, 2017
opisska
Profile Blog Joined February 2011
Poland8852 Posts
December 05 2019 15:32 GMT
#5
Fuck, I am now gonna freak out from every rash for years after I read this. This would seriously be an absolute nightmare for me, I have big respect to how well you seem to be taking it.
"Jeez, that's far from ideal." - Serral, the king of mild trashtalk
TL+ Member
WombaT
Profile Blog Joined May 2010
Northern Ireland25071 Posts
December 05 2019 17:04 GMT
#6
Get well soon man, if you don’t hit GM during this time I’ll be sorely disappointed :p

Hopefully you find the benefits system smoother to navigate than I did
'You'll always be the cuddly marsupial of my heart, despite the inherent flaws of your ancestry' - Squat
WombaT
Profile Blog Joined May 2010
Northern Ireland25071 Posts
December 05 2019 17:09 GMT
#7
They managed to assess me on a solid 0/40 for needs upon discharge from psychiatric hospital where I’d been for a year, lovely system there
'You'll always be the cuddly marsupial of my heart, despite the inherent flaws of your ancestry' - Squat
Vivax
Profile Blog Joined April 2011
21971 Posts
December 06 2019 03:24 GMT
#8
Weird I know someone who has the exact same problem as you. Started with the rash (alias purpura). Now he's on suppressants to stop his own antibodies from attacking his kidneys. Would interest me to know if there's a non-genetic cause.
ZerOCoolSC2
Profile Blog Joined February 2015
8982 Posts
December 06 2019 07:50 GMT
#9
Reminds me of when I got diagnosed with Hodgkin's Lymphoma.

Hope that transplant comes. I'd donate mine but I'm barred because of the cancer. Can't even donate blood.

Good luck!
alpenrahm
Profile Blog Joined December 2010
Germany628 Posts
December 06 2019 20:50 GMT
#10
My late uncle had three kidney transplants over the course of his life and he managed to live through almost 30 years of dialysis. I believe you can do better Jock.
Liquid`Drone
Profile Joined September 2002
Norway28648 Posts
December 06 2019 22:14 GMT
#11
damn, hope it works out for you and you get a transplant quickly, you're a good guy.
Moderator
Zambrah
Profile Blog Joined June 2011
United States7290 Posts
December 06 2019 23:42 GMT
#12
Damn, that fuckin' sucks. I really hope you get a transplant soon and that it goes well. Dialysis definitely sounds scary but I'm glad you're taking it well, that probably bodes well.

Get well soon!
Incremental change is the Democrat version of Trickle Down economics.
TaardadAiel
Profile Joined May 2017
Bulgaria750 Posts
December 08 2019 09:03 GMT
#13
Get well soon, man. I hope they find you a kidney soon. What's your blood type if you don't mind me asking?
WriterReV hwaiting!
asel
Profile Blog Joined June 2006
Germany1599 Posts
December 09 2019 09:52 GMT
#14
Get well soon!
eSTRO for life | #3 Sea.Really fan! | GGoliath! | aeterna societas honoris | cbta~ | Flash makes Terran look like Toss | aka RevaL
raynpelikoneet
Profile Joined April 2007
Finland43268 Posts
December 09 2019 15:28 GMT
#15
Damn.. Get well soon Jock!
table for two on a tv tray
Holyflare
Profile Blog Joined November 2010
United Kingdom30774 Posts
December 09 2019 16:29 GMT
#16
Hope it works out my dude! Let me know if you need anything.
Onegu
Profile Blog Joined May 2010
United States9699 Posts
December 10 2019 00:02 GMT
#17
Good luck man hope everything works out for you.
Try TL Mafia!!!
Jockmcplop
Profile Blog Joined February 2012
United Kingdom9614 Posts
December 10 2019 17:08 GMT
#18
Thanks so much for all your kind words guys <3
If I hadn't had training on coping with mental health issues I would be freaking out right now probably so that's good I guess...
At least I will have more time for mafia now
@TaardadAiel I don't actually know my blood type. Weird considering I need a transplant but I'm focusing on adjusting to my dialysis right now then once I'm settled I will start thinking about a transplant.
The medical staff seem to think I will go fairly high on the transplant list because I'm young compared to most renal patients.

Also thanks for TL+ fluidrone

I might do a blog about the experience of dialysis at some future date, just for informational purposes...

RIP Meatloaf <3
Djzapz
Profile Blog Joined August 2009
Canada10681 Posts
December 11 2019 00:07 GMT
#19
Wish you all the best! Do you have any idea what the cause of the kidney failure might be? Those things don't just die out of nowhere.
"My incompetence with power tools had been increasing exponentially over the course of 20 years spent inhaling experimental oven cleaners"
Vivax
Profile Blog Joined April 2011
21971 Posts
Last Edited: 2019-12-11 20:10:39
December 11 2019 20:04 GMT
#20
On December 11 2019 09:07 Djzapz wrote:
Wish you all the best! Do you have any idea what the cause of the kidney failure might be? Those things don't just die out of nowhere.


In essence it's this: https://en.wikipedia.org/wiki/IgA_nephropathy

Has multiple causes that can lead to it afaik, partly genetic, but genetics play a role in almost everything.

Caveat: There may be other causes I'm not aware of.
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