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Get well Chad.
Ironically, I'm going through a similar situation right now so I know how bad it can be. I was diagnosed with viral encephalitis (inflammation of the brain) in early April after suffering a series of really bad unexpected seizures (I'm not epileptic).
I probably didn't go through the same amount of pain that you did but a month in a half later I still have a long road to recovery ahead and I'm still unsure if I'll fully recover cognitively and be able to go back to school and work this fall.
I had to drop all my classes in the spring despite being a couple weeks away from completion and quit my school and summer jobs. Now I'm going to be in debt, behind on graduation and might never be as well as I was cognitively. Anyways, I hope you recovery swiftly, Chad. Keep your head up.
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Very captivating read Minigun, I hope you get better soon!
About the eye, not sure if I should write this, but here is a thought relating to this based on my experience. My girlfriend which I have been together with for +5 years is almost continuously having pains to a lesser or greater extent, within a large range of different symptoms. What many people question (myself included) is how is it possible for one person to be this sick all the time without having a "proper" diagnosis.
The first thing that comes to one's mind is that it is a psychological cause behind it. After this stretch of time I have however observed many things that I feel are hard to explain from a pure psychological view, such as her ability to attract a number of different infectious diseases (many of which I never heard of before and that mainly infects people 70+) or that she get pains in her muscles to the extent where she drops minor objects or migraine attacks that causes her to repeatedly vomit and so forth.
On the other hand I noticed that she often get her pain/injuries in streaks. Meaning that if she start to get bad she usually end up having a great variety of other pain issues in "pain periods". With this usually also follows that she gets depressed /sad /stressed partly due to the pain itself and partly because her inability to do the things she wants / aim to do (sometimes for months on end). Reversely there are periods where she is a lot healthier and more happy (which suspiciously tends to correlate with summer).
So I have these two extremes that both could explain her state. But what I observe in the end is always a blurry picture of the two, where it is impossible for me to untwine the cause to her pain. The two sides always co-exist and enhances each other, living in pain causes you to be depressed/stressed and being depressed/stressed/inactive enhances the pain you experience and create seeds for new pain.
The conclusion that I reached is that is often pointless to try separate them because the two are always entwined with each other and are equally real for the person experiencing them. You can never experience reality outside of your mind, that means that reality is whatever your mind tells you it is. Hence in the matter of pain is the only difference is how/if it can be treated.
So what I wanted to say in this very lengthy manner, is that from an outsiders point of view I think that your pain/stress/fear and general horrible situation in the last month seems a more likely explanation for the feeling you have behind your eye than the happenstance that you would get a seemingly unrelated disorder to your eye at the same time as all of this is going on.
Of course you should check it up once or twice again if it worries you. But if they really don't find anything I would start considering the possibility that it could be a creation of your mind. And that is very far from being crazy! I mean some people have bad hearing, other people cant see certain colors, people that lose their limbs can still feel them and so on, my point is that they all experience "reality" in a manner inconsistent with most of us, yet you would never argue that they are "crazy". And I dont see how this would be any different. It just means that should not be to stressed out if they cant find a cause for it, as it then is likely to go away once you get back to your everyday state of mind.
Hoped it was some food for thought, if nothing else I got to practice my english writing ^.^
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Get better soon. Everyone's hoping for your swift and healthy return.
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I recently had a hospital experience too. Not remotely as severe as yours, but the first in a long time for me. Stomach trouble and they misdiagnosed me completely. Fortunately the issue itself was very minor, but it still sucked and my anxiety was really bad for a while after that. Can only imagine how bad yours must be.
Glad to hear you had a great advocate with you in your mom. Advocates are so important and you're totally right, not having one can be a very real and serious problem. Also, if your anxiety stays high, there's no shame in seeing a clinical psychologist, especially after what you went through. It's sometimes stigmatized but it shouldn't be, and it might really help.
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i think i have the same problem! Doctor said i should just take warm baths twice a day . . does a real good job when u start throwing up for 3-4 hrs staright
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I have Crohn's as well and had a bladder fistula (was on Pentasa at the time and did not work at all) had surgery very similar to yours where they removed several inches of my large and small intestines. I had no issues or complications and went on Humira shortly afterwards. Basically, the combination of the two have caused the disease to pretty much completely go into remission for the last five years or so. So things can get better. Just make sure you pay attention to your body and be careful for the little flair ups. I find stress is typically the cause of them for me, so I just try to take it easy for a few days after and things improve. As far as diet I can eat and drink pretty what much ever I want, but high fiber diets (a lot of greens and legumes) works best for me. In short if you find a doctor you like and communicate well with him/her and eat right and take care of yourself things can probably improve a lot.
For the first few years after I was diagnosed I did not really manage it that well and I consistently felt really bad. I am 6'1" and was down to 133 lbs at one point, was skin and bones, am now about 185 with just a little bit of a beer belly.  I really gained a new perspective on things after the surgery and I feel like my life has been given back to me.
Feel free to PM me if you have any questions or want to talk about anything at all
-Erich
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God... just got a trauma from hospitals by reading this. 
Glad to hear you're getting better.
Wish you well.
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Wow. Poor Chad. Got love for Chad. Glad to see he is doing better!!! <3
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On May 17 2014 15:21 Onegu wrote:Show nested quote +On May 17 2014 05:21 KenZee wrote:
Is morphine like a last-resort? Why didn't you get any of that? Because the medicine he got Dilaudid ( Hydromorphone ) is iirc around 30x stronger than morphine and work on the opiate receptors in a slightly different way. Anyway get better. Hope you feel better.
Dude what
How could there be any pain whatsoever if it's 30x stronger than morphine? Unless it just wears off quickly or something.
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It's horrible what you've been through in the hospital. It's almost the same everwhere you go, if it's a restaurant a jewelry shop or sth or a hospital, if you are not 30 years+ or look like it you'll get no respect from anyone. It's the same here in Germany everywhere you go and I can feel with you on this, especially with the nurse/doctor stuff, been through it myself a few years back with a surgery.
I hope you get well soon and focus on your health before you focus on sc2 or anything else. Your fans will be there when you're better.
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god damn...
Thanks for sharing.
I have no idea about the eye, but it's probably because of the pressure/pain/tension. I had some constant pressure/light pain and I would feel my eye and head like they are under pressure. Sometimes my sight would go quite bad in a very short time and then recover to perfect in 15 minutes... it's very frightening to lose sight that fast and that badly.
I went to an eye doctor, he said the eyes are fine and it's normal for my age to get some eye problems (even though I had perfect eyesight and was like 23), he said it's probably from being allergic to something (was spring). I was 100% sure it's not allergy since I never have allergy problems and I got tested several years ago. I told him everything, and he was still talking lightly and joking and saying it's nothing. Fucker. The best part is, my mom said he's one of the best and people are saying he's a good doctor.
A while after that my sight went from perfect to bad in a very short time. So I completely agree with you when you say you have to be assertive with doctors/nurses, especially if you're kinda introverted (like me). If I had been adamant about it, I would probably not have lost my sight. I had a similar experience with a dentist. Next time I go to a fucking doctor, I'll rape them like I'm 3 ranks/leagues above them. Fucking idiots, they should listen to people when they say something, especially young people, since they don't have a reason to semi-bullshit like some older people do. (Some doctors are good though...)
I guess they're too used to people crying wolf all the time for everything, that they're not ready when the real wolf comes...
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Holy shit man don't even apologize for something like that... I would also recommend you never going to that angel of death hospital again by the sound of it..
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On May 20 2014 15:54 quirinus wrote:god damn... Thanks for sharing. I have no idea about the eye, but it's probably because of the pressure/pain/tension. I had some constant pressure/light pain and I would feel my eye and head like they are under pressure. Sometimes my sight would go quite bad in a very short time and then recover to perfect in 15 minutes... it's very frightening to lose sight that fast and that badly. I went to an eye doctor, he said the eyes are fine and it's normal for my age to get some eye problems (even though I had perfect eyesight and was like 23), he said it's probably from being allergic to something (was spring). I was 100% sure it's not allergy since I never have allergy problems and I got tested several years ago. I told him everything, and he was still talking lightly and joking and saying it's nothing. Fucker. The best part is, my mom said he's one of the best and people are saying he's a good doctor. A while after that my sight went from perfect to bad in a very short time. So I completely agree with you when you say you have to be assertive with doctors/nurses, especially if you're kinda introverted (like me). If I had been adamant about it, I would probably not have lost my sight. I had a similar experience with a dentist. Next time I go to a fucking doctor, I'll rape them like I'm 3 ranks/leagues above them. Fucking idiots, they should listen to people when they say something, especially young people, since they don't have a reason to semi-bullshit like some older people do. (Some doctors are good though...) I guess they're too used to people crying wolf all the time for everything, that they're not ready when the real wolf comes...
May I ask what is wrong with your eye?
I'm seriously concerned about it and no one is taking me seriously and it's pissing me off. There's something wrong and no one seems to care...
It's mostly the cause of my anxiety attacks. I feel it all the time and my body is telling me there is something wrong with my eye but I've seen 3 eye doctors....and I just saw an eye surgeon yesterday. I'm beginning to feel like I'm crazy...
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I can completely empathize with Minigun as I almost died having severe appendicitis. The head-surgeon at the hospital said he had never seen an appendix of that size (about 10-15cm) and was baffled how I wasn't in severe pain for many months. He told me I must have had it for at least 6 months, which is just insane because as you probably know, if the appendix bursts, you either get rushed to a hospital to have your intestines cleaned out or you die an agonizing death.
Well, actually I was in pain but it wasn't constant so I stupidly ignored it. I would get maybe 1-2 severe pain episodes a week. But suddenly, I just couldn't physically take a single bite, not even soup so was rushed to the hospital. The surgery went fine but the pain after surgery was something absolutely unbelievable. 10/10 pain as Minigun said. And after that traumatic experience I have also been experiencing the same symptoms as Minigun says (stress, anxiety), which I never really had until the surgery.
Oh and all that happened the day after my dad's funeral.
Fun times.
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Not sure if this has been mentioned before about the eye issue, but:
In addition to systemic and gastrointestinal involvement, Crohn's disease can affect many other organ systems.[30] Inflammation of the interior portion of the eye, known as uveitis, can cause blurred vision and eye pain, especially when exposed to light (photophobia).[31] Inflammation may also involve the white part of the eye (sclera), a condition called episcleritis.[31] Both episcleritis and uveitis can lead to loss of vision if untreated.
Source: http://en.wikipedia.org/wiki/Crohn's_disease
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So glad to hear you're ok minigun! doctors tend to ignore patient's complaints only because there are just so many people out there complaining about every little discomfort... the same thing happened to me last summer too hope u recover soon, and able to come back stronger and better!
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EPT
