Both. When she looks left, it is vertical, when she looks right, it is diagonal. This means that more than 1 nerve is involved... She cannot balance herself when walking, possibly due to the double vision. She says it feels like being drunk.

Sorry to hear that. =\

OptronX

United States84 Posts

August 16 2012 07:02 GMT

#26

I'm so sorry for what's happening to you Glacierz. Life is unpredictable, unforgiving, and unavoidable. No matter what you do, bad things will always happen to you, you just have to be strong enough to fight the good fight, my friend. Don't give up. You're not immature. And you're not inexperienced. You were blindsided by a sickness that you couldn't have foreseen.

No amount of grief and sorrow will change that. You need to be strong; for you and your girlfriend. You'll get through this, I know you will.

I'm sad for you to hear that all this is happening. Please keep us all posted on how she's doing.

My Love and Prayers,
Jack
http://thehonestlifeblog.wordpress.com/

Glacierz

United States1244 Posts

August 16 2012 10:55 GMT

#27

Turns out they don't have the materials needed for the test, going to rely on the blood work to confirm. I am doing my best to hold myself together by thinking positively. Appreciate the support guys!

Filter

Canada620 Posts

August 16 2012 12:16 GMT

#28

I came into this thread expecting some kid to be whining about this or that, and man was I wrong. I can only feel for you and her, and hope you find something uplifting reading the responses from people you've never met.

From my own experience, extremely dark times like this often lead to even greener pastures in the future though. When there is a real bond between two people and something traumatic happens it can change things. It simply won't be possible now, but all the regrets and feelings you have pouring out will only serve your relationship with her in a deeper more meaningful way than before. Often times in life you take things for granted, and overlook whats really important. Though rarely in a beneficial way it sometimes takes something crazy happening to show you how you really feel.

I sincerely hope she's okay and there's nothing really wrong, but in the event that that isn't the case I hope it brings you and her something much better... the feeling of closeness that is nearly impossible to capture or achieve and it only happens when you truly love somebody and something crazy happens.

Glacierz

United States1244 Posts

August 16 2012 17:20 GMT

#29

Just looked up some statistics, it's like 1 in 1-10 million chance of getting this thing. These numbers are not helping me feel better.

Recognizable

Netherlands1552 Posts

August 16 2012 18:32 GMT

#30

Has anything changed with her condition since she first started having symptoms?

Bumholio

1 Post

August 16 2012 19:07 GMT

#31

dude, i know its hard to deal with stuff like that... my dad had a brain aneurysm which ended up killing him, i spent a few days in intensive care with him... it is honestly the worst thing in the world knowing someone you love is not going to be the same person or is going to be horrible disabled, myself and my sister ended up turning off the life support due to complications, considering i'm only 16 this is so heart breaking... i hope everything is okay with your gf and if you ever need to talk to some randomer on the internet who's gone through similar, you can just message me or post on teamliquid

best of luck to ya mate

Russ

Glacierz

United States1244 Posts

August 17 2012 01:53 GMT

#32

Her condition seems stable. She did not respond to the initial drug they gave her (the one with the weakest side effects usually does not resolve Diplopia).

Russ/Bumholio,

Thank you for sharing your experience, and I am very sorry for your loss. I'm sure it took a lot of courage to be there with him until the last second. I wish I can be as brave as you, and learn to accept the outcome no matter what it may be. They did a MRI/MRV on her brain, no aneurysm or blood clot is found, so she is not in immediate danger. I guess we should count ourselves lucky since it could be a lot worse.

Glacierz

United States1244 Posts

August 17 2012 02:01 GMT

#33

On August 16 2012 21:16 Filter wrote:
I came into this thread expecting some kid to be whining about this or that, and man was I wrong. I can only feel for you and her, and hope you find something uplifting reading the responses from people you've never met.

From my own experience, extremely dark times like this often lead to even greener pastures in the future though. When there is a real bond between two people and something traumatic happens it can change things. It simply won't be possible now, but all the regrets and feelings you have pouring out will only serve your relationship with her in a deeper more meaningful way than before. Often times in life you take things for granted, and overlook whats really important. Though rarely in a beneficial way it sometimes takes something crazy happening to show you how you really feel.

I sincerely hope she's okay and there's nothing really wrong, but in the event that that isn't the case I hope it brings you and her something much better... the feeling of closeness that is nearly impossible to capture or achieve and it only happens when you truly love somebody and something crazy happens.

I definitely get what you are saying. We should never take anything for granted, and always live life with passion and kindness. There are things I wish I never said/did, but I only realize them when someone I love is in trouble.

Glacierz

United States1244 Posts

August 19 2012 03:51 GMT

#34

Update: They now think it is an early sign for MS since she did not respond to the drugs for MG. We are scheduling for a lumbar puncture on Monday, my heart is falling into pieces.

mizU

United States12125 Posts

August 19 2012 11:24 GMT

#35

:[ Stick with it! Keep on keeping on~

BlindKill

Australia1508 Posts

August 19 2012 12:13 GMT

#36

, this post just put all my problems in perspective. I wish you the best of luck, and I will remember this blog when I face such adversity in life.

VaultDweller

Romania132 Posts

August 19 2012 18:09 GMT

#37

I'm really sorry to hear this. I know how it feels, at least from the patient’s perspective. . I see you updated saying it might be MS so I can tell you a little about it if you want. I've been told I have MS 4 years ago and the effect it had on everyone around me and the way I see life was very powerful. But not all has been bad, you can live a good life even with MS. I’ve had a lot of time to talk to other people in this situation and research the hell out of this thing… The medication, for example, can work surprisingly well and you can go through most of your life without major complications ( the lead architect in my office has had MS for over 40 years - he’s 65 now - and he has been almost unaffected ). I’m not trying to belittle the situation, it is a serious condition but I just wanted to add some hope to what you read on the internet about it.

My story ends a bit differently though, after I thought I had MS for years, somebody finally had the inspiration to test me for all types of borellia ( this is the bacteria that causes Lyme) and found out that I actually have Lyme so… I’m sure that your doctors are competent but ask if they tested for all strings of borellia. Just saying.

I wish you both all the luck in the world.

Shady Sands

United States4021 Posts

August 28 2012 04:07 GMT

#38

Just showed my girlfriend this story. She thinks that even though your girl is unlucky to get this disease, it's balanced out because she has such a wonderful boyfriend. Good luck and stay strong

Telcontar

United Kingdom16710 Posts

August 28 2012 06:20 GMT

#39

Sorry to hear it's MG (it is 100% confirmed?). I wish you and your gf the best.

ecstatica

United States542 Posts

September 04 2012 06:31 GMT

#40

On August 28 2012 13:07 Shady Sands wrote:
Just showed my girlfriend this story. She thinks that even though your girl is unlucky to get this disease, it's balanced out because she has such a wonderful boyfriend. Good luck and stay strong

I guess since your gf doesn't have a similar condition we can safely conclude its balanced out by you being a shithead

Will OP update?

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