EPT
AMA, Testicular Cancer
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Zambrah
United States7340 Posts
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itsjustatank
Hong Kong9154 Posts
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Zambrah
United States7340 Posts
I'm currently severely neutropenic, so super threatened by even mild infections due to chemo killing off my immune system real good, so I guess right now is the most at-risk my life has been, but aside from massive fatigue, chemo brain fog, and some mild inflammation in places, I feel pretty alright atm! | ||
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kAra
Germany1382 Posts
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Uldridge
Belgium4856 Posts
If you drink coffee: are you still allowed to drink coffee? Where was/is the tumor located and is it a specific subset of a class of tumors? How 'permanent' throughout the day is the fatigue? | ||
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Zambrah
United States7340 Posts
On August 08 2024 20:05 Uldridge wrote: I wish you a full recovery. If you drink coffee: are you still allowed to drink coffee? Where was/is the tumor located and is it a specific subset of a class of tumors? How 'permanent' throughout the day is the fatigue? I will almost assuredly make a full recovery, Testicular Cancer is one of/the most cureable cancers out there! My tumor was in my left nut, it was a germ cell tumor and was more or less just kind of growing in it, I only noticed there was a problem because leftie grew to the size of ~a large chicken egg and was three times the normal size. Totally painless. The tumor type was a yolk sac type, this is where I got unlucky, because I have the rarer, more malignant, and aggressive choriocarcinoma brand of testicular cancer, which if left untreated likes to spread to places like the brain! So my tumor type and cancer type were basically some of the worst possible for testicular cancer, luckily even then its still all super treatable in all the same ways as the other less-spread-y types. The fatigue is like, I feel pretty alright as a baseline, but doing almost anything is like running, it just eats up your energy so hard and so fast that its very difficult to do anything for any length of time. Driving? Makes me tired ~30 minutes in. Walking to the grocery store? I got one of that .3 mile round trip in me per day, knocks me out for a good three hours after. Eating? Weirdly tiring. It all feels better rest, but trying to do very much at once is tough at the moment. My fatigue is probably going to be a lot worse than an 'average' chemo experience because chemo's killed my immune system harder than average, though. Some people are out there hiking for several miles a day on chemo. | ||
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wheelsonrent
1 Post
User was banned for this post. | ||
micronesia
United States24701 Posts
On August 08 2024 22:16 Zambrah wrote: My tumor was in my left nut, it was a germ cell tumor and was more or less just kind of growing in it, I only noticed there was a problem because leftie grew to the size of ~a large chicken egg and was three times the normal size. Totally painless. Was there a period of denial where you were noticing the problem but writing it off as not warranting seeing a doctor? Three times seems like a pretty big change from normal! TotalBiscuit acknowledged his delays in getting his symptoms checked out likely spelled his doom, unfortunately. | ||
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Zambrah
United States7340 Posts
Yeah, cancer definitely spreads, honestly I caught it early and I was still on the edge of having to do three months of chemo and a possible super difficult invasive surgery if it had spread to my lymph nodes, so quick action likely saved me a lot of pain. My initial oncologist visit estimated I had probably gotten the tumor ~4 months prior, so even another 4 month wait would’ve been a pretty hefty worsening of what I’d have had to do for treatment. Fast actions really important. They removed my left nut all of a week after viewing my ultrasound. I actually have been doing all of my medical stuff in Maryland, up to an hour and a half away, because I didn’t want to wait the 2+ weeks out that every Northern Virginia urologist was telling me. | ||
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micronesia
United States24701 Posts
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Xeofreestyler
Belgium6771 Posts
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Zambrah
United States7340 Posts
On August 09 2024 11:19 micronesia wrote: When you were getting your ultrasound of that area did they ask you if it was okay to bring in an intern to observe, and she was really hot, making the whole experience super awkward? Cause that totally happened to me, although I didn't end up having any serious medical problems thankfully. Having been through art school, I am intensely hard to phase in that way thankfully.  | ||
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DarkPlasmaBall
United States44605 Posts
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Zambrah
United States7340 Posts
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WombaT
Northern Ireland25669 Posts
I can’t think of many an insightful, or indeed amusing question to ask so I’ll just be rooting for a speedy recovery Hopefully there is the silver lining that you’ll be more free to post on TL for a bit :p | ||
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Zambrah
United States7340 Posts
Right now I'm at the Fallout Ghoul stage of hairloss which Im trying to relish. Sort of hope I can keep a few patches of strands around til Halloween, because I think it'd be a pretty amusing costume. | ||
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ZerOCoolSC2
8999 Posts
Here's to a full recovery m8! | ||
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Zambrah
United States7340 Posts
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ZerOCoolSC2
8999 Posts
Never any pain though. So I got lucky with that I suppose. What's the prognosis on return? Are they thinking you'll be clear or do you have a possible timeline when it could reappear? | ||
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Zambrah
United States7340 Posts
My second week of chemo I was in such excruciating pain I had to be put on oxycodone and that only just sort of got me down to from an 8.5/10 down to like a constant 5/10 on the pain scale, lol. Went to the ER for it twice initially before I got the prescription and whatever anti-inflammatories they hit me with through the IV were 10x better than oxycodone... If I ever do chemo again it will be under condition of hospitalization through the process because I will not sit in an ER waiting room for 3 hours in 8.5/10 pain under any circumstance of my choosing. I didnt know chemo could obliterate vaccinations and what not, do you know what your chemo regimen was? Like the drugs they used and such | ||
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ZerOCoolSC2
8999 Posts
I don't know the exact mix. It was a cocktail of 4 for the first and then a cocktail of 3 for the second 2. If that helps at all. | ||
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Zambrah
United States7340 Posts
Looks like Hodgkins Lymphoma has a ton of variations on chemo drugs, looks way less basic and standardized than testicular cancers chemo cycle | ||
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ZerOCoolSC2
8999 Posts
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Zambrah
United States7340 Posts
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