I have Klippel feil Syndrome. I have heart problems. I had surgery when I was little. Three to be exact >.>
I also had hemivertebrae. My pediatrician recommended I see a orthopedic Surgeon at Oakland Childrens hospital. (Well, because of my health insurance I was locked in Oakland)
OK, so he seems ok. Then one day he says it's progressing and I need an MRI, but not imminent surgery. I go back, he says I need surgery in 3 months. Christmas break of freshman year I have the surgery. It sucks. I'm in a lot of pain. I'm unable to be active for 9 months. I'ts painful beyojnd belief. They misdose pain meds, and I"mon 1/10 the dose of morphine I should be on. I'm on narcotics for 6 weeks. (stronger narcotics than vicodin) But I"m done.
I had to wear a giant brace for 4 months. In fact, this brace was misfitted. With my head forward. Kyphosed they call it. Over time, my fusion began to fail in the upper regions due to the misfitted brace. My neck literally became dislocated. We went back to the surgeon, who said I needed another surgery to correct this. We got a second opinion. He said that although that problem was not good, and needed to be treated, the main problem is there were two screws close to my aorta, and one in the outside of my lung. We got one second opinion. He didn't know what needed to be done. But he knew it wasn't good. My surgeon used to be his intern. he got on the phone and yelled at him.
We got a third opinion from a guy from UCSD who had done research in the area of screws and aortas. (lolwtf) He said it was close, but far enough to not be a problem.
I had the surgery with a Neurosurgeon out of Oakland. Some sensation returned in my right hand, (it was a bit numb on my pinky)
Anyways, I have this surgery . They didn't know how much they needed to refuse. They debated rejoining C7 and T1. But they decided against it. Turns out those two didn't fuse. They kept on rescheduling my appointment, and I got in 5 months later than I should have. It turned out that this level had not fused.
In addition to this I currently have back pain down my entire upper back. NOt severe, but fairly constant. It prevents me from doing any exertion long term. Although weightlifting is fine, anything more than that can be problematic.
So anyways, went to UCSF. Doctor ordered CT Myelogram. (Damn spinal taps >.>)
Had CT, he said I need all my rods removed. They give me pain so meh. Either July 21, 28 or Next year.
And he said my other two surgeons were in over their heads :/
Is cool. Like 1/4 my friends are there. I'd like to learn korean for the hell of it.
The end. (I got lazy 1/100 of the way through writing this part)
They'd have to strip muscles off the top half of my back.