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Active: 2198 users

UCSF, Surgery :( , Korea

Blogs > Froadac
Post a Reply
Froadac
Profile Blog Joined July 2009
United States6733 Posts
Last Edited: 2011-06-28 06:13:34
June 28 2011 06:12 GMT
#1
Ermk.

I have Klippel feil Syndrome. I have heart problems. I had surgery when I was little. Three to be exact >.>

I also had hemivertebrae. My pediatrician recommended I see a orthopedic Surgeon at Oakland Childrens hospital. (Well, because of my health insurance I was locked in Oakland)

OK, so he seems ok. Then one day he says it's progressing and I need an MRI, but not imminent surgery. I go back, he says I need surgery in 3 months. Christmas break of freshman year I have the surgery. It sucks. I'm in a lot of pain. I'm unable to be active for 9 months. I'ts painful beyojnd belief. They misdose pain meds, and I"mon 1/10 the dose of morphine I should be on. I'm on narcotics for 6 weeks. (stronger narcotics than vicodin) But I"m done.

I had to wear a giant brace for 4 months. In fact, this brace was misfitted. With my head forward. Kyphosed they call it. Over time, my fusion began to fail in the upper regions due to the misfitted brace. My neck literally became dislocated. We went back to the surgeon, who said I needed another surgery to correct this. We got a second opinion. He said that although that problem was not good, and needed to be treated, the main problem is there were two screws close to my aorta, and one in the outside of my lung. We got one second opinion. He didn't know what needed to be done. But he knew it wasn't good. My surgeon used to be his intern. he got on the phone and yelled at him.

We got a third opinion from a guy from UCSD who had done research in the area of screws and aortas. (lolwtf) He said it was close, but far enough to not be a problem.

I had the surgery with a Neurosurgeon out of Oakland. Some sensation returned in my right hand, (it was a bit numb on my pinky)

Anyways, I have this surgery . They didn't know how much they needed to refuse. They debated rejoining C7 and T1. But they decided against it. Turns out those two didn't fuse. They kept on rescheduling my appointment, and I got in 5 months later than I should have. It turned out that this level had not fused.

In addition to this I currently have back pain down my entire upper back. NOt severe, but fairly constant. It prevents me from doing any exertion long term. Although weightlifting is fine, anything more than that can be problematic.

So anyways, went to UCSF. Doctor ordered CT Myelogram. (Damn spinal taps >.>)

Had CT, he said I need all my rods removed. They give me pain so meh. Either July 21, 28 or Next year.

And he said my other two surgeons were in over their heads :/


Korea

Is cool. Like 1/4 my friends are there. I'd like to learn korean for the hell of it.

The end. (I got lazy 1/100 of the way through writing this part)

They'd have to strip muscles off the top half of my back.

****
Jaxtyk
Profile Blog Joined December 2009
United States600 Posts
June 28 2011 06:45 GMT
#2
Damn. And I complain about a little paper cut I get. I hope that your future operations go well.
To tell the truth....I could beat anyone in the world.
cz
Profile Blog Joined August 2007
United States3249 Posts
June 28 2011 06:48 GMT
#3
Jesus, tough life. I feel for you, that's a lot of stuff to deal with, not to mention all the incompetence from the doctors - I've found most of them really don't have a clue what they are doing either, although I only have minor problems compared to you.

Stick through this and write more if it helps you - I'll read it. Gimme a PM if you have to and I'll read and give some comments.

Goodluck.
moopie
Profile Joined July 2009
12605 Posts
June 28 2011 07:02 GMT
#4
Wow that really sucks, hope things get better for you
I'm going to sleep, let me get some of that carpet.
SockArms
Profile Blog Joined November 2010
United States591 Posts
June 28 2011 07:13 GMT
#5
Best of luck I really hope they can finally fix this surgery really really sucks...

will keep ya in my thoughts
| Cloud9 | DK | Liquid |
Zona
Profile Blog Joined May 2007
40426 Posts
June 28 2011 10:33 GMT
#6
On June 28 2011 15:45 Jaxtyk wrote:
Damn. And I complain about a little paper cut I get. I hope that your future operations go well.

You said it.

Best of luck.
"If you try responding to those absurd posts every day, you become more damaged. So I pay no attention to them at all." Jung Myung Hoon (aka Fantasy), as translated by Kimoleon
sc4k
Profile Blog Joined January 2010
United Kingdom5454 Posts
June 28 2011 10:35 GMT
#7
Thanks for filling us in Froadac...hope everything turns out better! Sounds like an absolute bitch to live with.
Nazarene
Profile Blog Joined October 2005
Denmark996 Posts
June 28 2011 12:07 GMT
#8
Sucks dude, I hope everything works out in the end
FortuneSyn
Profile Blog Joined July 2008
1826 Posts
June 28 2011 12:08 GMT
#9
Hey man I hope things will get better for you soon. You are really unlucky for having these kind of problems. Try to make sure you keep your docs in check and be really demanding on them. Don't let them treat you like just another patient.
nGsSadPanda
Profile Joined June 2011
Philippines8 Posts
June 28 2011 12:36 GMT
#10
You just gotta believe you'll get better, and you will. It might be hard, but you'll pull through and things will start to look up! This must sort of suck, but you're fortunate to live life every day
cz
Profile Blog Joined August 2007
United States3249 Posts
June 28 2011 15:05 GMT
#11
Bump.

If you repost this during the day you'll get a lot more replies btw.
eshlow
Profile Joined June 2008
United States5210 Posts
June 28 2011 15:33 GMT
#12
keep on getting strong yo
Overcoming Gravity: A Systematic Approach to Gymnastics and Bodyweight Strength
Chill
Profile Blog Joined January 2005
Calgary25997 Posts
June 28 2011 15:45 GMT
#13
Easiest ways to learn Korean:

1. Go to Korea and don't be lazy or ignorant.
2. Start attending college-level classes.
3. Get a tutor.
4. Get language exchange friends.

Rosetta stone, websites, and books won't teach you shit.

Good luck
Moderator
AoN.DimSum
Profile Blog Joined September 2008
United States2983 Posts
June 28 2011 16:11 GMT
#14
good luck froadac!!!! Get it done fast so you can lift big weights in the future !! :D
by my idol krokkis : "U better hope Finland wont have WCG next year and that I wont gain shitloads of skill, cause then I will wash ur mouth with soap, little man."
Slithe
Profile Blog Joined February 2007
United States985 Posts
June 28 2011 16:59 GMT
#15
Yea bro TLHF is backing you up. Get well and then get Big.
Froadac
Profile Blog Joined July 2009
United States6733 Posts
June 28 2011 19:08 GMT
#16
Meh. Trying to figure out if I can get it done before college apps. If not, I'll need to do it after senior year :/
Froadac
Profile Blog Joined July 2009
United States6733 Posts
June 28 2011 19:15 GMT
#17
Oh, and thanks Chill.

My biggest question in terms of that is would community college courses be reasonable in general, or should I just try and audit a course at UC Berkeley or the such.
Chill
Profile Blog Joined January 2005
Calgary25997 Posts
Last Edited: 2011-06-28 19:27:09
June 28 2011 19:26 GMT
#18
If you're starting from scratch, a community college class would be perfect. If you live in a major city you might be able to find classes that are offered outside of colleges (like through community programs).

My entire city only has an "intro to Korean" class. I only found out about it once I was passed that level. Once you get passed that it's more difficult to continue improving.

Lucky for you, Koreans love to travel so it should be easy to find language exchange partners.
Moderator
rabidch
Profile Joined January 2010
United States20289 Posts
June 28 2011 19:37 GMT
#19
ouch.

talk about crappy doctors
LiquidDota StaffOnly a true king can play the King.
Froadac
Profile Blog Joined July 2009
United States6733 Posts
Last Edited: 2011-06-29 03:04:24
June 28 2011 19:38 GMT
#20
Probably. I go to school at a highschool with many foreign exchange students. Last year there were a substantial number of koreans, but this year no.

I know hangul. That's the extent of my knowledge ^^

Oh. Darnit. Budget cuts strike back as course is no longer offered tt

What did you do to learn Chillmeister?
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