EPTI feel so bad for this girl
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Jstor
United States107 Posts
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Deleted User 3420
24492 Posts
No, but seriously, she looks happy at least. So... she eats while she sleeps? | ||
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hidiliho
Canada685 Posts
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OpticalShot
Canada6330 Posts
User was temp banned for this post. | ||
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Tiegrr
United States607 Posts
On February 01 2011 10:53 hidiliho wrote: Seems fake. She would die as an infant if it was true. Besides it's not a credible source Here's your credible source. http://www.cbsnews.com/8301-504763_162-20009051-10391704.html Although CBS isn't much better, TBH. @Travis That's literally the first thought that popped up in my mind. | ||
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elmizzt
United States3309 Posts
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d_so
Korea (South)3262 Posts
User was temp banned for this post. | ||
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Vain
Netherlands1115 Posts
On February 01 2011 10:53 hidiliho wrote: Seems fake. She would die as an infant if it was true. Besides it's not a credible source Well the photo's arent shopped for sure + Show Spoiler + | ||
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Eric9
United States125 Posts
On February 01 2011 10:55 OpticalShot wrote: Should spoiler the images... ^ I think I lost some of my 20/20 vision. Please spoiler unsightly images, and NSFW. | ||
alffla
Hong Kong20321 Posts
 i would feel terrible if i had that syndrome. | ||
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hidiliho
Canada685 Posts
On February 01 2011 10:58 d_so wrote: spoiler those fucking images god damn, no one wants to see that and if they make the mistake of clicking the spoiler at least they'll have a sense of "I am the curious cat that was killed" Even if he did, you wouldn't resist looking at the picture  | ||
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Asdkmoga
United States496 Posts
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BlackJack
United States10472 Posts
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ShoCkeyy
7815 Posts
On February 01 2011 11:00 Asdkmoga wrote: yeah dont get how she sleeps then O.O This if she has to eat every 15mins... Unless it's like a tube that she has while she sleeps that feeds her, or like an IV. | ||
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Craton
United States17250 Posts
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TemplarCo.
Mexico2870 Posts
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Torte de Lini
Germany38463 Posts
What's her favourite meals? These seem like really casual questions considering her condition, but then again, aren't they questions that, for the most part, are important aspects in her life? | ||
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Gatsbi
United States1134 Posts
ps: her dad's haircut is awesome | ||
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Sufficiency
Canada23833 Posts
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Terrifyer
United States338 Posts
On February 01 2011 10:59 Eric9 wrote: ^ I think I lost some of my 20/20 vision. Please spoiler unsightly images, and NSFW. this post angered me so much! I am sorry but this is like, a human being too, man. | ||
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zobz
Canada2175 Posts
On February 01 2011 11:15 Torte de Lini wrote: What does she eat? What's her favourite meals? These seem like really casual questions considering her condition, but then again, aren't they questions that, for the most part, are important aspects in her life? Sucks to be her, not that it's any of my god damned business. | ||
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pullarius1
United States522 Posts
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ProfessorCold
United States41 Posts
On February 01 2011 11:34 Terrifyer wrote: this post angered me so much! I am sorry but this is like, a human being too, man. Yeah, just because you're a human being doesn't mean people can't dislike looking at you. That's just having bad expectations. | ||
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McDonalds
Liechtenstein2244 Posts
On February 01 2011 11:38 ProfessorCold wrote: Yeah, just because you're a human being doesn't mean people can't dislike looking at you. That's just having bad expectations. You're talking about hiding a person's face because you don't like it. If her physical appearance isn't safe for work then I wonder how she copes with walking around in public. | ||
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Terrifyer
United States338 Posts
On February 01 2011 11:38 ProfessorCold wrote: Yeah, just because you're a human being doesn't mean people can't dislike looking at you. That's just having bad expectations. yeah, but you don't have to be a dick about it, you know? just...don't look. | ||
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Torte de Lini
Germany38463 Posts
On February 01 2011 11:44 Terrifyer wrote: yeah, but you don't have to be a dick about it, you know? just...don't look. Agreed. A lot of people aren't the best looking, my father, for instance, isn't the best looking man in the world. To say you lost vision after seeing her? You're exaggerating more than to just say that he should add spoilers or that she is not attractive looking. It's clear your intent was more than that. | ||
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Randomaccount#77123
United States5003 Posts
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Sceptor87
Canada266 Posts
And seriously? Some of you guys. This is the internet. There's a HELL of a lot worse things than an image of someone that has a clinical disease on it. Just because you don't like the way she looks doesn't mean it should be censored. Go to encyclopedia dramatica then come back. It'll pop your cherry. | ||
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Tony Campolo
New Zealand364 Posts
+ Show Spoiler + ![[image loading]](http://static2.stuff.co.nz/1291977593/924/4447924.jpg) Noonan syndrome is a genetic disorder characterised by short stature, heart defects, a slightly different facial appearance, and problems with the lymphatic system, according to Otago University Professor of Paediatric genetics Dr Stephen Robertson. Intellectual performance is usually unaffected, he says. The condition can be passed genetically through family members or occur randomly through a faulty gene. Noonan syndrome is thought to be widely underdiagnosed, so many people could have it and be completely unaware, he says. It is thought it could occur to different degrees in as many as one in every 1000 people. http://www.stuff.co.nz/national/crime/4447735/Sex-abuse-started-with-girl-8 | ||
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Alexson
Belarus293 Posts
On February 01 2011 10:59 Eric9 wrote: ^ I think I lost some of my 20/20 vision. Please spoiler unsightly images, and NSFW. and On February 01 2011 10:58 d_so wrote: spoiler those fucking images god damn, no one wants to see that and if they make the mistake of clicking the spoiler at least they'll have a sense of "I am the curious cat that was killed" get banned | ||
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Man.Magic
United States178 Posts
Has she ever had a period? If no, I could see this story being realistic. If yes, she is lucky to be alive and not in a coma. User was temp banned for this post. | ||
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pfods
United States895 Posts
But anyways, I remember reading about her a few years ago in my bioethics class. Was pretty heartbreaking then and it is now. | ||
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Cleomenes
United States138 Posts
On February 01 2011 10:53 hidiliho wrote: Seems fake. She would die as an infant if it was true. Besides it's not a credible source It's real. I went to Texas State and I've seen her walking around campus. Go down the page on the link and you'll see her and friends wearing our school's shirts. | ||
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Lexpar
1813 Posts
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zobz
Canada2175 Posts
On February 01 2011 11:48 Barrin wrote: What's this crap about spoilers? Kids these days... no respect. Respect for who, the news outlet or the forum member who posted her picture here for public viewing and consideration? She is ugly, let there be no lie about it. Though it's really nobody's concern but hers what she looks like, if you bloody ask somebody about it what kind of response do you expect? | ||
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SecondChance
Australia603 Posts
On February 01 2011 10:53 hidiliho wrote: Seems fake. She would die as an infant if it was true. Besides it's not a credible source Tis true my friend, have seen it many times on TV. | ||
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Djzapz
Canada10681 Posts
And now childish little kids come on forums and say that it's too much for them? Give me a break. If we had to hide ugly people we'd have to shut down all the "post your picture" and "post a picture of you and your girlfriend" threads on every forum ever. | ||
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Mariner
United States1 Post
User was banned for this post. | ||
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zerroth
Canada173 Posts
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d_so
Korea (South)3262 Posts
On February 01 2011 11:57 Alexson wrote: Serious assholes in this thread. I feel sorry with the women and I hope shes happy with her life and douche bags like and get banned k, mod. o wait. asking for a spoiler is not beyond the bounds of decency. It's not like i'm directly criticizing this girl. There's all sorts of crazy ailments out there with fucked up images (like the mannequin baby one), and I don't want to have to run into them just by clicking on a TL thread. why don't you take your well-informed knowledge of posting decency that you've acquired through all 79 posts of yours and teach others to be like you. | ||
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Avila
Canada39 Posts
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Jstor
United States107 Posts
On February 01 2011 11:56 Tony Campolo wrote: http://www.stuff.co.nz/national/crime/4447735/Sex-abuse-started-with-girl-8 I don't know whether I should be angry, or feel pity for this guy after reading this... | ||
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Kyhol
Canada2574 Posts
Is it better to be dead or alive with this condition? I'd like to hear her answers in an interview. Off to search! Looks mean absolutely nothing, if she has a good sense of humor she could pull off some sick scares Halloween, that's what I'd do. User was temp banned for this post. | ||
Manifesto7
Osaka27147 Posts
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Xusneb
Canada612 Posts
I imagine she must get nutrition at night from a nasogastric tube. Or maybe her body has adapted enough to survive through the night on her last big meal. Quite an interesting story - I am quite certain this is a metabolic disorder and I wonder which gene(s) she's defective in. | ||
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kaleidoscope
Singapore2887 Posts
if she falls, wont she easily damage her bones and veins/arteries? | ||
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pfods
United States895 Posts
On February 01 2011 12:32 Manifesto7 wrote: Shocking update to the douchebags in this thread. Some people have afflictions that alter their appearance. While you may find it difficult to look at, responding with ridicule is not acceptable. That you think it is speaks volumes about the ugliness that exists inside yourself. I love you. Not for bringing the ban hammer, but for that last line. | ||
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Gleve
United States206 Posts
On February 01 2011 10:59 alffla wrote: thtas freaking crazy man, that realy sucks i would feel terrible if i had that syndrome.Makes me appreciate my normal life... | ||
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LOLDOZER
Russian Federation24 Posts
User was temp banned for this post. | ||
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Xusneb
Canada612 Posts
On February 01 2011 12:32 Manifesto7 wrote: Shocking update to the douchebags in this thread. Some people have afflictions that alter their appearance. While you may find it difficult to look at, responding with ridicule is not acceptable. That you think it is speaks volumes about the ugliness that exists inside yourself. Wow, thanks a lot, Mani! I actually haven't posted in months but this got me riled up enough to submit a response lol. This is the reason why I love TL and still have some hope for humanity  | ||
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Amnesia
United States3818 Posts
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MahatmaSC2
United States192 Posts
On February 01 2011 12:09 Mariner wrote: I'd hit that. User was banned for this post. This deserved a perm ban? User was temp banned for this post. | ||
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Enervate
United States1769 Posts
On February 01 2011 12:08 Djzapz wrote: It's funny - usually it's the internet that's less censored... People see her IRL every day and there's not a damn thing they can do about it because it's her human right to - you know - exist. And now childish little kids come on forums and say that it's too much for them? Give me a break. If we had to hide ugly people we'd have to shut down all the "post your picture" and "post a picture of you and your girlfriend" threads on every forum ever. No one is saying "hide ugly people". Sure, the guy who remarked about losing his 20/20 vision or whatever was certainly being a jerk, but it's not unreasonable to ask for images showing disfigured people or people with diseases that dramatically affect their appearance to be spoilered. Images like these are quite gruesome and can be unsettling. Is it that hard to believe that people have different tolerance thresholds for these kinds of things? Sure, some people might say she has to live with it while all I have to do is look at a picture. But it's not a zero-sum game. It's not like she suffers less just because I suffer a little, or vice-versa. Movies with graphic imagery are often given R ratings when they show disfigurement and stuff like that. Not everyone has a high resilience to gruesome/gory imagery. It has nothing to do with respect or lack thereof. For example, I think most people would rather not see the torture that occurred in concentration camps during the Holocaust. It doesn't mean we don't think those things didn't happen or that we understate the gravity of such things. | ||
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Manifesto7
Osaka27147 Posts
On February 01 2011 12:41 Enervate wrote: No one is saying "hide ugly people". Sure, the guy who remarked about losing his 20/20 vision or whatever was certainly being a jerk, but it's not unreasonable to ask for images showing disfigured people or people with diseases that dramatically affect their appearance to be spoilered. Images like these are quite gruesome and can be unsettling. Is it that hard to believe that people have different tolerance thresholds for these kinds of things? Sure, some people might say she has to live with it while all I have to do is look at a picture. But it's not a zero-sum game. It's not like she suffers less just because I suffer a little, or vice-versa. Movies with graphic imagery are often given R ratings when they show disfigurement and stuff like that. Not everyone has a high resilience to gruesome/gory imagery. It has nothing to do with respect or lack thereof. For example, I think most people would rather not see the torture that occurred in concentration camps during the Holocaust. It doesn't mean we don't think those things didn't happen or that we understate the gravity of such things. I agree with what you are saying, but if you examine the way people were reacting to the pictures in the thread, they were all hostile and insulting. I would also argue that putting them in spoilers would enhance the "car wreck" mentality of people, and create even more negative reactions to the pictures. | ||
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iokke
United States1179 Posts
Feel bad for her, at least she is happy with her life, shows a very strong character imho | ||
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nortorius
Canada1210 Posts
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bobobobojos
United States59 Posts
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Kamais_Ookin
Canada4218 Posts
On February 01 2011 12:37 Xusneb wrote: I second this, it's hard to believe the lack of respect from some people thinking it's funny, it's not. Thanks Manifesto.Wow, thanks a lot, Mani! I actually haven't posted in months but this got me riled up enough to submit a response lol. This is the reason why I love TL and still have some hope for humanity | ||
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opsayo
591 Posts
legitimately the food and calories must go somewhere - does she just poop a lot or does her body still find a way to burn those calories internally also i understand manifesto's point but there was really no warning in the title that people would be exposed to somewhat shocking pictures | ||
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Kamais_Ookin
Canada4218 Posts
On February 01 2011 12:55 opsayo wrote: Spoilering the pictures would just enforce the image to be worse then it actually is, not to mention the way people reacted asking for spoilers was disgusting like:admins going on a killing spree legitimately the food and calories must go somewhere - does she just poop a lot or does her body still find a way to burn those calories internally also i understand manifesto's point but there was really no warning in the title that people would be exposed to somewhat shocking pictures "I think I lost some of my 20/20 vision. Please spoiler unsightly images, and NSFW." "spoiler those fucking images god damn, no one wants to see that and if they make the mistake of clicking the spoiler at least they'll have a sense of "I am the curious cat that was killed" | ||
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zobz
Canada2175 Posts
On February 01 2011 12:40 MahatmaSC2 wrote: This deserved a perm ban? User was temp banned for this post. Only because there are different standards for first posts. Someone who introduces themself to a new webforum with an empty, slightly provokative one-line meme is someone to be dealt with with less compassion imo. I don't consider this thread particularly a shrine, though. This is where people flock to so that they can prove to their insecure selves and to their fellow sheep how much of a big heart they have. It's like anybody with a birth defect lives solely to be the object of pity, and a tool for social advancement. | ||
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1Eris1
United States5797 Posts
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RageOverdose
United States690 Posts
I'll finish the rest of that when I'm done, so you don't think you know what I'm saying if you start there. Watching a video about her was interesting, because it was just what I expected. A happy, cheerful girl who doesn't let problems tear her down and she tries to find a way to use whatever she has as a positive influence on people. I've found that a ton of people in situations like her are similar, they let their strengths overpower their weaknesses, the latter of which they are very aware of. So she conveys her experience of being bullied as support to other kids who deal with the same shit. So, to finish my beginning statement. I don't feel bad for her. I would if she was unhappy or wasn't cheerful, but since she smiles, is confident in herself despite her ailment, and brings happiness to others with her personality, then I can't feel bad for her because she really doesn't seem to feel bad for herself. No need to pity someone who needs none. Oh yeah, for everyone who wants it in spoilers, grow some. Life isn't always pretty. | ||
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bubO
United States367 Posts
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meegrean
Thailand7699 Posts
On February 01 2011 12:55 opsayo wrote: also i understand manifesto's point but there was really no warning in the title that people would be exposed to somewhat shocking pictures I wouldn't even be surprised to see tubgirl. It's hard for pictures on the Internet to shock me anymore. | ||
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Sufficiency
Canada23833 Posts
On February 01 2011 13:05 zobz wrote: Only because there are different standards for first posts. Someone who introduces themself to a new webforum with an empty, slightly provokative one-line meme is someone to be dealt with with less compassion imo. I don't consider this thread particularly a shrine, though. This is where people flock to so that they can prove to their insecure selves and to their fellow sheep how much of a big heart they have. It's like anybody with a birth defect lives solely to be the object of pity, and a tool for social advancement. If you read the ban list, those two are of the same person. | ||
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Torte de Lini
Germany38463 Posts
On February 01 2011 13:11 RageOverdose wrote: I don't... I'll finish the rest of that when I'm done, so you don't think you know what I'm saying if you start there. Watching a video about her was interesting, because it was just what I expected. A happy, cheerful girl who doesn't let problems tear her down and she tries to find a way to use whatever she has as a positive influence on people. I've found that a ton of people in situations like her are similar, they let their strengths overpower their weaknesses, the latter of which they are very aware of. So she conveys her experience of being bullied as support to other kids who deal with the same shit. So, to finish my beginning statement. I don't feel bad for her. I would if she was unhappy or wasn't cheerful, but since she smiles, is confident in herself despite her ailment, and brings happiness to others with her personality, then I can't feel bad for her because she really doesn't seem to feel bad for herself. No need to pity someone who needs none. Oh yeah, for everyone who wants it in spoilers, grow some. Life isn't always pretty. No one should feel bad for how she likes if she is happy, so in part, I agree with your post. It's just how she has to live her life, constantly eating. Imagine all the activities that you have to stop doing just so you can live. Consider the fact that she may not be hungry at all, but must eat in order to continue to live. It's a tough life. Feel inspired if anything :3 | ||
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Mawi
Sweden4365 Posts
its like she already accepted the fact she has to live this life and chose to just live and be happy for the moment so i think it would be bad to feel sorry for her because i think she dont want us to feel sorry for her she probablly telling us hey i know im like this but im having fun and dont want you to feel sorry for me, maybe it sounds cruel but she sure is strong | ||
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Noxie
United States2227 Posts
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.Aar
2177 Posts
On February 01 2011 13:16 meegrean wrote: I have seen plenty of disfigured people before. Stuff like this shouldn't be censored because it would only create more misunderstanding as well as less sympathy. I wouldn't even be surprised to see tubgirl. It's hard for pictures on the Internet to shock me anymore. Not everyone is as much of a manly man as you. ONFUCKINGTOPIC: That's terrible. There's really nothing that can be done for her? I can't even find this shit on Wikipedia. Well, there's Progeria, I guess, but apparently people with that typically only live to 13 or so. They can't just like.. hook her up to a tube that feeds her obscene amounts of whatever? Seems a bit hard to believe she actually eats every 15 minutes considering sleep etc. | ||
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Sad[Panda]
United States458 Posts
On February 01 2011 13:05 zobz wrote: Only because there are different standards for first posts. Someone who introduces themself to a new webforum with an empty, slightly provokative one-line meme is someone to be dealt with with less compassion imo. I don't consider this thread particularly a shrine, though. This is where people flock to so that they can prove to their insecure selves and to their fellow sheep how much of a big heart they have. It's like anybody with a birth defect lives solely to be the object of pity, and a tool for social advancement. I really don't think it would matter who you are and whether you had 1k posts or 1 those posts are completely necessary its not like she chooses to have whatever ails her. Atleast she is still happy its nice to see that people can live through their adversity with a positive outlook =] | ||
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Jemmani
United States76 Posts
Back on topic.. baby pic is epic! Glad this girl is happy. | ||
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Zealotdriver
United States1557 Posts
On February 01 2011 12:32 Manifesto7 wrote: Shocking update to the douchebags in this thread. Some people have afflictions that alter their appearance. While you may find it difficult to look at, responding with ridicule is not acceptable. That you think it is speaks volumes about the ugliness that exists inside yourself. I'm glad TL banned those fucking assholes who think ugly images should be spoilered. Respect the woman as a fellow human being. When BoingBoing posted a pic of Chase No Face, Xeni caved to the internet jerks and hid the image. http://chasenoface.blogspot.com/ mod edit - not relevant to the thread. User was warned for this post | ||
HawaiianPig
Canada5155 Posts
I don't feel bad for her. No, pity isn't the emotion. It was at first... until I learned about more about her. Watch that video. She's making the most of what she's got and doing it damn well. Kudos to her, she's happy, and she's helping others. That's a hell of a lot more than many of us can say. | ||
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0mgVitaminE
United States1278 Posts
That looks like it would be terrible, hard to imagine really. Makes you appreciate what you have | ||
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McKTenor13
United States1383 Posts
But she does seem like she is happy. At least probably happier than every person who makes fun of her. Plus she can probably eat whatever she wants! Unlimited junk food maybe? Make light of a not so great situation. | ||
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huyNh
Canada366 Posts
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vileChAnCe
Canada525 Posts
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ieatkids5
United States4628 Posts
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ddrddrddrddr
1344 Posts
With self reflection, it pains me to know that while I'm wise enough to recognize the greatness in her, I am still unable to ignore her appearance and its implications. I she one day finds someone out there who truly loves her. Mutual love is an experience that everyone should experience at some point. As much as anyone can pity her, empathize with her, and befriend her, they're easy for the common person to do while keeping their distance. It would take a much better man than I see past her illness to give her the happiness that she can't "earn". | ||
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SCC-Faust
United States3736 Posts
Edit: I miss you Man.Magic. | ||
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Bleak
Turkey3059 Posts
At moments like this we should feel grateful and happy for what we have, no matter what. We shouldn't feel bad for our own "flaws" that we think we have, because there are people that are born simply unlucky and just don't deserve that.I've been on diet for 2 and a half years now, and I eat every 2 hours to speed up my metabolism....Having to eat every 15minutes sounds like a nightmare...Best wishes for this girl I hope doctors can find a cure. | ||
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Box.N.Straw
Canada55 Posts
Props to her for proving those doctors wrong! | ||
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FetTerBender
Germany1393 Posts
Much respect for this girl, because she doesnt lose her confidence in herfself and her will to live! Seeing stuff like that makes me think that the usual struggles I face in everday life are not that hard anyways and that I should man up more often. | ||
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0tso
Sweden67 Posts
http://en.wikipedia.org/wiki/Tarrare | ||
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Jemmani
United States76 Posts
On February 01 2011 16:45 SCC-Faust wrote: I don't quite understand how it is always the people who seem to get so fucking shafted by life tend to be the happiest. Edit: I miss you Man.Magic. Most emo people are use to being spoiled and having anything they want their whole lives. And when they dont get what they want or life gets a little hard, they whine and cry about it. If your born tough and have to be tough the whole time. you dont grow up neglecting the things you can do and have. This is just my opinion. | ||
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EtherealDeath
United States8366 Posts
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iFU.pauline
France1554 Posts
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Liveon
Netherlands1083 Posts
The girl makes the best out of her life, which is good for her. I'd probably not have the same persistence to live life if I was like that. So It's great she can. I just don't like the pictures. | ||
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eth3n
718 Posts
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mcbrite
Germany229 Posts
On February 01 2011 10:53 hidiliho wrote: Seems fake. She would die as an infant if it was true. Besides it's not a credible source It's not fake... I read about her in the equivalent of "Times Magazine" here in Germany... | ||
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Sm3agol
United States2055 Posts
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Hynda
Sweden2226 Posts
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Ghostcom
Denmark4782 Posts
On February 01 2011 22:20 Hynda wrote: I wonder why it can't be solved using IV, that should at least in theory circumvent any kind of metabolic or internal organs failure, and you wouldn't have to eat all the time. It would be nice to have had a proper doctor explain these conditions and why certain methods don't work. Then again that wouldn't be news. To put it simple: With i.v. feeding you circumvent the entire digestive system - something the body has a pretty hard time coping with. It is also incredibly hard to avoid infections in an i.v. line which in such a case as hers would most likely equal a deathsentence... EDIT: Just to mention one of the simpler problems: The pancreas releases more insulin when you get glucose orally than when you get it through an i.v. line - this is called the incretin effect. This happens because the pancreas actually reacts on the mere thought of being about to eat (roughly speaking obviously), but you circumvent this mechanism when using an i.v. line. And to the guy who said she couldn't go through surgery: She can, one would just have to put her on a ventilator and in a complete coma. The only reason for the 8 hour rule is to avoid aspiration - but if you put her on a ventilator you can block all acces to her lungs so aspiration becomes a non-issue. To make a parallel: when a traumapatient is recieved, you don't wait 8 hours before you operate if said patient needs an operation But you are right, it's definatly not optimal... | ||
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absalom86
Iceland1770 Posts
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Scaipax
Netherlands54 Posts
It isn't a pretty sight to see, i understand that she is still a human being, but still...not a pretty sight. On-topic: this is horrible for her, how does she sleep? I think that i wouldn't be able to live life like that, seriously. | ||
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vOdToasT
Sweden2870 Posts
On February 01 2011 11:56 Tony Campolo wrote: There's all sorts of fucked up disorders out there that really make you question the existence of a God: A good god, that is. | ||
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chongu
Malaysia2585 Posts
On February 01 2011 22:51 absalom86 wrote: At least she smiles and seems happy. T____T i'm glad for her | ||
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Shiragaku
Hong Kong4308 Posts
But other than that, she seems to make the best out of her life. She does not lock herself in like I feel like doing most of the time with my healthy body, she can speak well, and she seems very charismatic and intelligent. | ||
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WLV
Canada76 Posts
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Scaipax
Netherlands54 Posts
On February 01 2011 23:09 WLV wrote: LMFAO. this is such a troll thread ><! Nice contribution to the troll thread by the way. HURRAY! | ||
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randommuch
United States370 Posts
On February 01 2011 11:59 pfods wrote: Don't breasts, of those size, contain a fair amount of fat in them? They just seem really disproportional to the rest of her body, given her condition. But anyways, I remember reading about her a few years ago in my bioethics class. Was pretty heartbreaking then and it is now. I wanted to say that but didn't want to seem rude, but yeah it does see really off. | ||
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Hynda
Sweden2226 Posts
On February 01 2011 22:37 Ghostcom wrote: To put it simple: With i.v. feeding you circumvent the entire digestive system - something the body has a pretty hard time coping with. It is also incredibly hard to avoid infections in an i.v. line which in such a case as hers would most likely equal a deathsentence... EDIT: Just to mention one of the simpler problems: The pancreas releases more insulin when you get glucose orally than when you get it through an i.v. line - this is called the incretin effect. This happens because the pancreas actually reacts on the mere thought of being about to eat (roughly speaking obviously), but you circumvent this mechanism when using an i.v. line. And to the guy who said she couldn't go through surgery: She can, one would just have to put her on a ventilator and in a complete coma. The only reason for the 8 hour rule is to avoid aspiration - but if you put her on a ventilator you can block all acces to her lungs so aspiration becomes a non-issue. To make a parallel: when a traumapatient is recieved, you don't wait 8 hours before you operate if said patient needs an operation But you are right, it's definatly not optimal...I noticed I worded that badly, using IV as a supplement while still allowing for the digestive system to be working would that still stress the system? As for infections, aslong as you are careful it shouldn't be a major issue (while being a major hassle) I have a friend whos been on IV pretty much 12 hours a day because he was pretty much born without a proper stomache and he's never had a infection in his life. But if this works for her it works, it's just worrying that you never hear this stories about people over 50. | ||
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CCK
Sweden16 Posts
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Euronyme
Sweden3804 Posts
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Silentness
United States2821 Posts
On February 01 2011 17:07 Jemmani wrote: Most emo people are use to being spoiled and having anything they want their whole lives. And when they dont get what they want or life gets a little hard, they whine and cry about it. If your born tough and have to be tough the whole time. you dont grow up neglecting the things you can do and have. This is just my opinion. This is pretty much the exact point. Some people just don't appreciate what they have... they just want more and more. "I want a new car." "I want the new i-Pad" Or people are complaining about their body or face so they go through numerous body surgeries or facial surgeries because they don't appreciate what they have whether it's material items or their actual body. Seeing people that come from lesser income having a happy life is always awesome and humble to see just like when you see people overcome their disabilities like this young woman. I swear the average age on this forum has to be like 12 though. You guys are just asking for bans by posting stupid comments that don't contribute anything even close to human intelligence on this thread. I know I'm happy with the things I have and the way I look. That's pretty much the main point of what she was saying in the youtube clip if anyone didn't see it yet. | ||
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Ghostcom
Denmark4782 Posts
On February 01 2011 23:32 Hynda wrote: I noticed I worded that badly, using IV as a supplement while still allowing for the digestive system to be working would that still stress the system? As for infections, aslong as you are careful it shouldn't be a major issue (while being a major hassle) I have a friend whos been on IV pretty much 12 hours a day because he was pretty much born without a proper stomache and he's never had a infection in his life. But if this works for her it works, it's just worrying that you never hear this stories about people over 50. He's a lucky guy then. Having a port á cath means a shitload of medication and you still run a pretty high risk of thrombosis and infections (no matter how careful you are really). But as you mention yourself, that is also the reason why you don't hear about any "old" people with these sorts of disorders... They simply die too early. | ||
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WLV
Canada76 Posts
On February 01 2011 23:11 Scaipax wrote: Nice contribution to the troll thread by the way. HURRAY! =3 User was temp banned for this post. User was warned for this post | ||
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Jstor
United States107 Posts
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yoonyoon
Korea (South)1065 Posts
On February 02 2011 00:44 Jstor wrote: However, this current thread that you’re in – this is where shit gets real. Because it is here that Manifesto7, sworn enemy of my mentor, Stimey, went on a banning spree induced by me. I don’t know if that’s trolling in the standard dictionary definition, but I assure you, laughed hella hard when Mani came in and banned everyone in sight, in a troll thread I made for the exact purpose of enticing a mod to go apeshit krayz. That’s not even counting the massive flamewar between people defending her looks and people insulting them, that I sparked as a side effect. Doesn't this just create an opportunity to easily spot the trolls and wipe them out at once? Kinda efficient. Anyways, I was kind of confused about her chest as well. I don't get how the disease works, but aren't boobs basically fat and tissue? | ||
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GreEny K
Germany7312 Posts
On February 01 2011 12:47 Manifesto7 wrote: I agree with what you are saying, but if you examine the way people were reacting to the pictures in the thread, they were all hostile and insulting. I would also argue that putting them in spoilers would enhance the "car wreck" mentality of people, and create even more negative reactions to the pictures. I agree completely, just because she was unfortunate enough to be born with such a disorder doesn't mean that a bunch of assholes should sit around on TL and poke fun at her. How would you guys feel if your wife is expecting a child and you hear the kid will have this disorder? Wouldn't be so funny would it? The fact that you make fun of her ugliness just reflects your inner-ugliness, as Mani already said. And we don't ask you to spoiler all of your comments do we? | ||
Nyovne
Netherlands19135 Posts
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zatic
Zurich15325 Posts
On February 02 2011 00:44 Jstor wrote: However, this current thread that you’re in – this is where shit gets real. Because it is here that Manifesto7, sworn enemy of my mentor, Stimey, went on a banning spree induced by me. I don’t know if that’s trolling in the standard dictionary definition, but I assure you, laughed hella hard when Mani came in and banned everyone in sight, in a troll thread I made for the exact purpose of enticing a mod to go apeshit krayz. That’s not even counting the massive flamewar between people defending her looks and people insulting them, that I sparked as a side effect. Well if that is his new thing I am happy. We could use a lot of honey pot threads like this to weed out the idiots. Tdot is coming over to the Light Side finally. | ||
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