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My damned body - Page 2

Blogs > Aerisky
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BassInSpace
Profile Joined June 2011
Australia165 Posts
July 07 2012 12:56 GMT
#21
Hey man, I have had pneumothoraces in the past, so I'll let you know my experience, and I'm gonna be honest. Click the spoiler if you wanna prepare yourself, or just ignore it haha.

3 years ago, I had a pneumothorax on my left lung. Had a procedure almost identical to yours (except they didn't stick the tube in for 3-4 days after... That came later) and went home. A few weeks later it recurred. Turns out it was another bubble (I'm not sure why your doctors scared you so much haha), they did the same procedure with the tube this time, nothing happened for a few days (lung didn't fully reinflate) and they transferred me to another hospital to perform actual surgery on me. I suspect this surgery is the one you're going to undertake. Click the spoiler if you wanna know what happens. I'll be honest, you might not like what you read, then again, it might not be as bad as you think.

+ Show Spoiler +
Basically they cut off the portion of your lung with the bubbles, and stick the lung to the top of the chest cavity with some sort of special substance, so that it won't collapse again.

After the operation, I had a tube that was attached to the box thing that connections to the suction nozzle on the wall (I'm sure you know what I'm talking about haha) coming out of the side of my chest where they made the incision to get in. It's purpose was to suck out the blood/fluid that was collecting since they operated on the lung. They will not let you out of hospital until they are confident that there is no more blood/fluid collecting (the box can measure how much is coming out of you), and that your lung stays inflated. Finally,. they'll take the tube out (it actually forks into 2 parts going into you, because they made 2 incisions).

I'm not gonna lie. The post surgery stay sucks (it varies, but for me it lasted around 7 days?). First, it obviously hurts to have the tube in you 24 hours of the day. They hooked me up to painkillers through an IV drip that was constantly pumping it into my back, a morphine drip which I could control with a button, and gave me painkillers (morphine based) every 2-3 hours if I needed it) Your movement is restricted as well (gotta carry the box around with you everywhere and drag the pole with the IV drips attached to it). I experienced this 3 times. After the surgery on the left, my right lung had a small but recurring collapse on the right side a year later, and was advised to have the same surgery. Did it, there was an infection during the surgery, and had to go through the whole post surgery thing again. On the plus side, I'm all good now


Basically, I know what it feels like. It sucks wondering if you'll keep having these episodes. But the surgery you're gonna get is designed to stop it from ever happening again, as opposed to the procedure you had done originally. Just try to stay positive, and look forward to a pneumothorax free life after this
Aerisky
Profile Blog Joined May 2012
United States12129 Posts
Last Edited: 2012-07-07 13:13:17
July 07 2012 13:08 GMT
#22
Thanks for the info yo!! Holy crap.....so it recurred that many times for you?! T___T I already know that there's a high chance of recurrence if you get two, but I'm really afraid I'm going to get many many pneumothoraces and that they won't go away without a permanent surgery (as in your case). There's a moderate chance that you'll be able to grow out of them given time. There will probably be several more occurrences but provided they are relatively minor, there's a chance that they'll eventually end without having to undergo a major surgery.

But fuck...I'm so afraid of pain it's not even funny. When I was prepped for the first surgery my entire body started to shake uncontrollably...and wow, that's a lot of painkillers for the post surgery.

I know what you're talking about for the "big" or permanent surgery thanks to googling and PMs--it's called pleurodesis. I'm just hoping I don't have to go through that and that I'm able to recover just with the chest tubes and eventually get better which is possible. Pleurodesis usually is performed if they think you're going to get many recurrences or they think that it's going to develop into something very serious. Really scared now that I know pleurodesis hurts so much... ;__; fortunately you don't lose much lung function and it essentially prevents this from happening again but....ugh... :/
Jim while Johnny had had had had had had had; had had had had the better effect on the teacher.
BassInSpace
Profile Joined June 2011
Australia165 Posts
Last Edited: 2012-07-07 13:23:50
July 07 2012 13:22 GMT
#23
Yeah, my left side collapsed 3 times in total before the surgery (the first time was about 4 years ago, I had the EXACT same symptoms but never got it checked out, hurt quite a bit in certain positions but thought it would just go away, which it did). So the doctors suggested I get the surgery. The right side on the other hand, had 2 small collapses, and they were tiny, but the doctor suggested I get it because it recurred and I agreed, did not want to deal with it getting worse. I think it all depends on your doctor and whether they're conservative or not. My health insurance also covered it, so it wasn't too hard to make the decision to just get it done on the right side. And yeah it's called a pleurodesis, there are different forms of it though as I'm sure you found out.

A great way to deal with the pain is to keep yourself distracted. I stocked up on anime on my laptop and the hospital I was at had wireless. Finished pretty much the entire FMA Brotherhood series in hospital, and researched parts for the computer I was planning to build. Reminding yourself how sweet it's gonna be when you're finally out helps too haha. If you wanna ask anything or just wanna talk about it feel free to PM or just post here. I'd be happy to help.
Aerisky
Profile Blog Joined May 2012
United States12129 Posts
July 07 2012 13:29 GMT
#24
hahaha, FMA Brotherhood is great! And yeah, you don't realize how awesome your life is until something happens that prevents you from doing a lot of things. I hope I won't have to have the pleurodesis in the end but we'll see I guess. One step at a time T_T

Thank you very much for the help and the offer! Just resting right now, apparently it's not urgent and I'm really hoping that it gets good enough that I won't require a chest tube monday before I go back to the states. Depending on how it seems, I might indeed go for the pleurodesis too back in the US, but I'm definitely very scared of the coming pain. Watching SC and tennis it's easy to take my mind off of it, but once I'm in the hospital for the pleurodesis I'll probably start getting a bit worried knowing about the coming pain, and once I'm on the hospital bed I'll be all tensed up and ready to cry ;_____; even a potential chest tube worries me.
Jim while Johnny had had had had had had had; had had had had the better effect on the teacher.
BassInSpace
Profile Joined June 2011
Australia165 Posts
July 07 2012 13:41 GMT
#25
When are you going back to the US again? I was told I couldn't fly for about 10 weeks (I think, can't remember) after the first procedure with the tube because of the air pressure in the plane. And don't worry about pain during the actual surgery (if you even need it), you'll be knocked out haha. And everyone gets nervous I'm sure. The second time they put the needle thing into me (so before the pleurodesis) i was freaked the crap out. It didn't help when I heard the following exchange between the doctors (this was in the ER, with ER doctors who hadn't prepared for this, not specialists so this won't happen to you lol)

"I can't quite seem to get it into the leak"
"It's not going? push harder"
"I think I'm hitting his rib"

I could effing feel it scraping my rib at that point lol. Then they told me it wasn't working and they had to use the tube, and I was effing scared when they showed it to me too. I think that procedure is scarier than the actual surgery. It's just the post surgery experience that sucks. But hey, I had the surgery, your pneumothorax could very well fix itself and you could outgrow it. Stay positive
Aerisky
Profile Blog Joined May 2012
United States12129 Posts
July 07 2012 13:53 GMT
#26
Oh, when I go back to the US depends on what the doctors tell me. After the very first and only procedure so far (1 month ago, right before I left for China on schedule, chest tube) the doctors told me I could go to the China within a week, which is what happened... :x

And ah, they knock you out for the pleurodesis? That's a bit better to know, and it's especially good to know the that chest tube procedure is scarier than the pleurodesis because I was damn scared during chest tube >___< I think I might be able to deal with the recovery pain from pleurodesis better as well with things to distract me and whatnot~

Yeah, I'm definitely trying to stay positive. We'll see what happens. Thanks so much man!! I'm so grateful for teamliquid, seriously. You're awesome ^^
Jim while Johnny had had had had had had had; had had had had the better effect on the teacher.
BassInSpace
Profile Joined June 2011
Australia165 Posts
July 07 2012 15:25 GMT
#27
Glad to help
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