EPT
Relief...?
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Pulimuli
Sweden2766 Posts
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Sfydjklm
United States9218 Posts
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Grobyc
Canada18410 Posts
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Sky
Jordan812 Posts
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Pulimuli
Sweden2766 Posts
On April 18 2011 13:49 Sky wrote: I'd say that'd be a breath of fresh air if you indeed had mastocytosis over carcinoid syndrome. You would have went from a ticking clock to something that's damage could be treated. Yeah tell me about it, with carcinoid syndrome i would have had about 10-15 years to live at best. Sure Mastocytosis is not pleasent, but its managable with todays medicine | ||
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Pulimuli
Sweden2766 Posts
On April 18 2011 13:44 Grobyc wrote: Good to hear you should be able to manage it. Lucky it isn't anything more severe. Keep us updated! Yeah, well it can be severe or even fatal but with treatment it should be managable most of the time as with most chronic diseases. I'll probably have to prepare for flare-ups every now and then even with treatment but as long as it can ease my symptoms and keep me from not dying from allergic shock im all good  | ||
tofucake
Hyrule19022 Posts
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Pulimuli
Sweden2766 Posts
On April 18 2011 22:45 tofucake wrote: I've been trying to think of what to say but I haven't been able to come up with anything other than "holy shit". Is "good luck" appropriate here? I don't even know. Er...hope it doesn't get worse, I guess. Uh yeah.. with the rashes and all the jointpain and fatigue etc i thought of Lupus, but then i figured its so rare in caucasian males i probably have something more common... but hellz no, i get an "orphan disease" yeah i hope it doesnt progress too badly until i start proper treatment, atm im just taking a fistful of antihistamines. | ||
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